NICE say that the longer you leave it for a GAD test after being 'diagnosed' the less reliable the GAD test becomes. The C-Peptide is a much more useful test as it measures the state of your beta cells regardless of the cause and is the most reliable test as time progresses. Sadly the NHS has relied too much on GAD to diagnose T1 assuming T1 is mainly caused by GAD antibodies. In practice it probably isn't the main cause. There are other antibodies and viruses can cause beta cell death as I believe it did in my case.Interesting that you were diagnosed Type 2 in 2013, I have been treated as Type 2 since 2012, until 18th December last year!.....same story as you - not at all overweight, lost a heap went down to 9 stone! We're not that rare it seems from spending a few weeks on this forum - though I think you and I are slower-developing than many.
Do you know if you had a GAD antibody test recently? And was it negative or positive? I was negative (T1 are commonly but not always positive) - but there is no doubt that I am no longer producing insulin. I'd just be interested to know a bit more about GAD's in long-term mis-diagnosed T2 that become LADA/T1 - my consultant did say that I could well be negative and that I may have been positive in the past.
NICE say that the longer you leave it for a GAD test after being 'diagnosed' the less reliable the GAD test becomes. The C-Peptide is a much more useful test as it measures the state of your beta cells regardless of the cause and is the most reliable test as time progresses. Sadly the NHS has relied too much on GAD to diagnose T1 assuming T1 is mainly caused by GAD antibodies. In practice it probably isn't the main cause. There are other antibodies and viruses can cause beta cell death as I believe it did in my case.
I got the c-peptide test which came back that I'm still producing some insulin but I have been put on insulin. I was a week on the 24hr one and I got called yesterday to go back to the clinic to get the meal time one and taken off all pills. My bg is still running a bit high, still in double figures, but I'm on low units just now, 8 on the 24hr one and 2 units at each meal time one. I've to call back on Monday to give my DSN my readings.Interesting that you were diagnosed Type 2 in 2013, I have been treated as Type 2 since 2012, until 18th December last year!.....same story as you - not at all overweight, lost a heap went down to 9 stone! We're not that rare it seems from spending a few weeks on this forum - though I think you and I are slower-developing than many.
Do you know if you had a GAD antibody test recently? And was it negative or positive? I was negative (T1 are commonly but not always positive) - but there is no doubt that I am no longer producing insulin. I'd just be interested to know a bit more about GAD's in long-term mis-diagnosed T2 that become LADA/T1 - my consultant did say that I could well be negative and that I may have been positive in the past.
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