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Just diagnosed Type2, almost no advice or help given!
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<blockquote data-quote="World Hereafter" data-source="post: 347943" data-attributes="member: 52158"><p><span style="color: #4000BF">hi folks!</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">Hope everyone is doing well and managing to get the supoprt and answers they need!?</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">I've not posted in a while as was trying to get to grips with everything re: Diabetes and to be honest I got a bit overloaded with info after a few weeks reading tons of info on here every day and reading everything I could lay my hands on elsewhere about T2 :crazy: .</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">then Xmas got in the way of my best-laid plans, coupled with a cold/throat infection and then that snap of very cold weather... result was my daily carbs average crept up from mid December for 3 to 4 weeks... went from c. 120g to over 180g daily (although had nothing indulgent & no sweet stuff). As result, my BG levels went up again, and I re-gained 5lbs of the 1 stone I had lost since Diagnosis back in November <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite10" alt=":oops:" title="Oops! :oops:" loading="lazy" data-shortname=":oops:" /> <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /> At least this PROVED to me (and removed any last vestiges of doubt I might have had!) that CARBS affect BG levels and weight more than anything else.. in fact, the On-Track phone app graphs for daily BG levels and total daily carbs show the direct link between the two without ANY doubt! </span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">6th January saw me get back on track with the low carbing, although am now hovering around 140g per day, but the weight is stubbornly refusing to shift (only dropped 3lbs in 4 weeks). BG readings have dropped a bit, but are still higher than before Xmas.. now at an average daily 7 or 8, whereas before Xmas was down to 6-somethings. Just shows what a few extra carbs each day can do.</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">I have yet to receive ANY appointments for the list of checks (Retina, Feet, Cholesterol breakdown, 24 hours ECG etc.) I was told I would get (by Practice Nurse at Diabetes Clinic before Christmas), so have booked an appt to go and see her again next week (as my first HbA1c is due soon too - yikes!).</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">Some good news though!! I did actually manage to persuade the Practice nurse (I went in armed with information I had printed off from here and other sources about self-testing !) to finally prescribe me some strips (even though GP had previously vehemently refused) ... anyway, she said I could have.. wait for it... 50 per month!! That means I can test 1.6 times per day ... woo hoo! :lol: :lolno: ok, tis better than nothing I suppose, but I really had to go loaded with info and quotes and had to do some serious battling and persuading and quoting NICE and Dept Health and so on. </span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">I also went on the DESMOND course. Verdict?? oh dear! What an incredibly patronising and very, VERY basic (like they were talking to primary school children) experience! </span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">First hour and half spent asking us all how long we've had Diabetes and what sysmptoms we have and what we think caused it.</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">Then at least an hour spent in a group activity having to "guess how many sugar lumps in a can of Coke" and other basic food items which were laid out on plates on a table. </span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">Then we were told (for about half an hour) that it is "CALORIES and nothing else" that we have to watch in order to "lose weight and control your Type 2 Diabetes". The fact that some in the room were NOT overwight didn't seem to figure, nor did the fact some of us made clear we dont eat any sugary or junk foods and never have!</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">The subjects of Test Strips and Carbs was raised by one other chap and myself, but we were very quickly sidelined and our points and queries were very quickly quashed with ("no need for T2's to self-test as it's covered by annual HbA1c test") :crazy: These were added to a flip chart at the back of the room (out of attendees' view) of "Burning Issues" to be covered at the end "if we have time" (which of course, we didn't as the course was "not allowed" to run over time, by even 5 minutes).</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">The trainers/Nurses moved quickly onto how we "MUST" all eat "plenty of healthy starchy carbs" at each meal. :roll: I tried to point out that ALL carbs (not just simple sugars) raise my blood levels, and was quickly TOLD that this was almost certainly due to my "other health issues".... ***??? :***: :x When I mentioned I'd previously being on a low Gi diet for many years and yet still ending up T2, I was slapped down verbally with "low Gi is just a fancy term which means starchy carbs" !!! WOW! :shock: </span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">Left the course feeling VERY frustrated and like they did NOT want their version of what T2's MUST do to be questioned. Also, I felt really sad and very concerned that <strong>over half </strong>the attendees were just taking it all in as though the DESMOND info is Gospel and the ONLY way to sort out their Diabetes i.e. have one Hba1c test per year (more often is "pointless" apparently!); Eat LOTS ("one third of plate!" :shock: !) of Starchy carbs (Potatoes, Rice, Pasta, Grains, Bread) at each meal; Absoutely NO need to self-test at all if T2; avoid sweets, Lucozade, Coke and other sugary drinks ('no s**t Sherlock'!?) ; and you MUST limit your calorie intake to lose weight. </span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">Was also VERY noticeable how the fact that <strong>over 80% of the attendees said they had family history of T2</strong>, yet NO dicsussion or mention made of the hereditary factors as a possible cause of T2... instead it was ALL put down to weight (specifically belly-fat) and lack of exercise, even though several people pointed out they had previously been fit and healthy and their T2 was only picked up when being tested for other things. </span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">WOW! If this is the sum of the "education" and support officially provided by the UK's healthcare system for T2's , then is it seriously ANY wonder hospital beds up and down the country are filled every single day with patients with Diabetic complications??? These complications must be costing the NHS <em><strong>WAY</strong></em> more to treat and manage than it would cost them to provide some test strips and correct nutritional info and proper T2 education in the first place??</span></p><p><span style="color: #4000BF"></span></p><p><span style="color: #4000BF">I am speechless and incredibly saddened at how inept, ineffective and arrogant much of our NHS has become. And even more aghast that medical professionals seem to have forgotten one of the very the first rules of medical training... <strong>"LISTEN TO THE WHAT THE PATIENT TELLS YOU".</strong></span></p></blockquote><p></p>
[QUOTE="World Hereafter, post: 347943, member: 52158"] [color=#4000BF]hi folks! Hope everyone is doing well and managing to get the supoprt and answers they need!? I've not posted in a while as was trying to get to grips with everything re: Diabetes and to be honest I got a bit overloaded with info after a few weeks reading tons of info on here every day and reading everything I could lay my hands on elsewhere about T2 :crazy: . then Xmas got in the way of my best-laid plans, coupled with a cold/throat infection and then that snap of very cold weather... result was my daily carbs average crept up from mid December for 3 to 4 weeks... went from c. 120g to over 180g daily (although had nothing indulgent & no sweet stuff). As result, my BG levels went up again, and I re-gained 5lbs of the 1 stone I had lost since Diagnosis back in November :oops: :( At least this PROVED to me (and removed any last vestiges of doubt I might have had!) that CARBS affect BG levels and weight more than anything else.. in fact, the On-Track phone app graphs for daily BG levels and total daily carbs show the direct link between the two without ANY doubt! 6th January saw me get back on track with the low carbing, although am now hovering around 140g per day, but the weight is stubbornly refusing to shift (only dropped 3lbs in 4 weeks). BG readings have dropped a bit, but are still higher than before Xmas.. now at an average daily 7 or 8, whereas before Xmas was down to 6-somethings. Just shows what a few extra carbs each day can do. I have yet to receive ANY appointments for the list of checks (Retina, Feet, Cholesterol breakdown, 24 hours ECG etc.) I was told I would get (by Practice Nurse at Diabetes Clinic before Christmas), so have booked an appt to go and see her again next week (as my first HbA1c is due soon too - yikes!). Some good news though!! I did actually manage to persuade the Practice nurse (I went in armed with information I had printed off from here and other sources about self-testing !) to finally prescribe me some strips (even though GP had previously vehemently refused) ... anyway, she said I could have.. wait for it... 50 per month!! That means I can test 1.6 times per day ... woo hoo! :lol: :lolno: ok, tis better than nothing I suppose, but I really had to go loaded with info and quotes and had to do some serious battling and persuading and quoting NICE and Dept Health and so on. I also went on the DESMOND course. Verdict?? oh dear! What an incredibly patronising and very, VERY basic (like they were talking to primary school children) experience! First hour and half spent asking us all how long we've had Diabetes and what sysmptoms we have and what we think caused it. Then at least an hour spent in a group activity having to "guess how many sugar lumps in a can of Coke" and other basic food items which were laid out on plates on a table. Then we were told (for about half an hour) that it is "CALORIES and nothing else" that we have to watch in order to "lose weight and control your Type 2 Diabetes". The fact that some in the room were NOT overwight didn't seem to figure, nor did the fact some of us made clear we dont eat any sugary or junk foods and never have! The subjects of Test Strips and Carbs was raised by one other chap and myself, but we were very quickly sidelined and our points and queries were very quickly quashed with ("no need for T2's to self-test as it's covered by annual HbA1c test") :crazy: These were added to a flip chart at the back of the room (out of attendees' view) of "Burning Issues" to be covered at the end "if we have time" (which of course, we didn't as the course was "not allowed" to run over time, by even 5 minutes). The trainers/Nurses moved quickly onto how we "MUST" all eat "plenty of healthy starchy carbs" at each meal. :roll: I tried to point out that ALL carbs (not just simple sugars) raise my blood levels, and was quickly TOLD that this was almost certainly due to my "other health issues".... ***??? :***: :x When I mentioned I'd previously being on a low Gi diet for many years and yet still ending up T2, I was slapped down verbally with "low Gi is just a fancy term which means starchy carbs" !!! WOW! :shock: Left the course feeling VERY frustrated and like they did NOT want their version of what T2's MUST do to be questioned. Also, I felt really sad and very concerned that [b]over half [/b]the attendees were just taking it all in as though the DESMOND info is Gospel and the ONLY way to sort out their Diabetes i.e. have one Hba1c test per year (more often is "pointless" apparently!); Eat LOTS ("one third of plate!" :shock: !) of Starchy carbs (Potatoes, Rice, Pasta, Grains, Bread) at each meal; Absoutely NO need to self-test at all if T2; avoid sweets, Lucozade, Coke and other sugary drinks ('no s**t Sherlock'!?) ; and you MUST limit your calorie intake to lose weight. Was also VERY noticeable how the fact that [b]over 80% of the attendees said they had family history of T2[/b], yet NO dicsussion or mention made of the hereditary factors as a possible cause of T2... instead it was ALL put down to weight (specifically belly-fat) and lack of exercise, even though several people pointed out they had previously been fit and healthy and their T2 was only picked up when being tested for other things. WOW! If this is the sum of the "education" and support officially provided by the UK's healthcare system for T2's , then is it seriously ANY wonder hospital beds up and down the country are filled every single day with patients with Diabetic complications??? These complications must be costing the NHS [i][b]WAY[/b][/i] more to treat and manage than it would cost them to provide some test strips and correct nutritional info and proper T2 education in the first place?? I am speechless and incredibly saddened at how inept, ineffective and arrogant much of our NHS has become. And even more aghast that medical professionals seem to have forgotten one of the very the first rules of medical training... [b]"LISTEN TO THE WHAT THE PATIENT TELLS YOU".[/b][/color] [/QUOTE]
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