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LADA Diabetes Fed up of being a guinea pig
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<blockquote data-quote="Hertfordshiremum" data-source="post: 2063396" data-attributes="member: 507802"><p>Hi all</p><p></p><p>I really need some advice and the diabetic nurse I see at my local hospital has said she just doesn’t know. But wants to try something and I am unsure about this. I am their only patient with LADA Diabetes. I was diagnosed a year ago and already have 2 other auto immune diseases which slightly complicated things for me. However last year after a few months I was finally diagnosed in June with over 100 GAD antibodies. Also Hba1c of 104 I was started on 2 x 500mg slow release metformin (can just about tolerate the slow release) and 6 units of Lantus slow acting insulin. Had to up to 7 units in hot weather. Hba1c dropped to 52 However started to have a lot of hypos in autumn last year and the Lantus was slowly reduced down 4 then 2 then around October/November I stopped using this as per directed by the diabetic nurse. However around Christmas I started having as many highs as I have lows and it varies between 15 and 3.5 regularly. Quite often in the same day As my hba1c was 48 nothing was done. On my visit last week Hba1c is now 54 and diabetic nurse wants me to go back on insulin. I have not changed anything I do, she thinks I am just coming out of honeymoon period. I thought it would be the Lantus again but she wants me to try Levemir, 3 units before breakfast and 2 before dinner. However my reading before dinner are very varied This week ranging from 4.9 to 9. Surely I cannot take this when it’s 4.9. Also I see a side effect is weight gain, this is worrying me hugely. My other autoimmune disease is hashimotos (thyroid being attacked) so I take Levothyroxine but 4 years ago I put on 3 stone in 6 weeks and long story short the doctor wasn’t bothered when I returned saying it wasn’t working and during this time I exercised every spare hour and ate very little and no carbs. Only when I finally paid to see an endocrinologist who changed my tablet and the time I take it did my symptoms go and I lost all the weight. I really don’t want to go through a problem with weight gain again. I eat low carbs and about 1000 calories a day in fact my diabetic nurse says I should eat more. I also do a lot of exercise. I suppose my question is does anyone else take Levemir and is weight gain a problem and does anyone else have very varied levels and how do they manage this please? I did suggest to the nurse that maybe I should do something different every day but she seems intent on looking for a pattern and I don’t think there is one. I often eat the same dinner and sometimes before bed it’s 8 and other times it’s 13. Any help would be really appreciated, or can anyone recommend an endocrinologist specialising in LADA in Hertfordshire please. By the way I have changed doctors. Thank you for any help, feeling really fed up with it all</p></blockquote><p></p>
[QUOTE="Hertfordshiremum, post: 2063396, member: 507802"] Hi all I really need some advice and the diabetic nurse I see at my local hospital has said she just doesn’t know. But wants to try something and I am unsure about this. I am their only patient with LADA Diabetes. I was diagnosed a year ago and already have 2 other auto immune diseases which slightly complicated things for me. However last year after a few months I was finally diagnosed in June with over 100 GAD antibodies. Also Hba1c of 104 I was started on 2 x 500mg slow release metformin (can just about tolerate the slow release) and 6 units of Lantus slow acting insulin. Had to up to 7 units in hot weather. Hba1c dropped to 52 However started to have a lot of hypos in autumn last year and the Lantus was slowly reduced down 4 then 2 then around October/November I stopped using this as per directed by the diabetic nurse. However around Christmas I started having as many highs as I have lows and it varies between 15 and 3.5 regularly. Quite often in the same day As my hba1c was 48 nothing was done. On my visit last week Hba1c is now 54 and diabetic nurse wants me to go back on insulin. I have not changed anything I do, she thinks I am just coming out of honeymoon period. I thought it would be the Lantus again but she wants me to try Levemir, 3 units before breakfast and 2 before dinner. However my reading before dinner are very varied This week ranging from 4.9 to 9. Surely I cannot take this when it’s 4.9. Also I see a side effect is weight gain, this is worrying me hugely. My other autoimmune disease is hashimotos (thyroid being attacked) so I take Levothyroxine but 4 years ago I put on 3 stone in 6 weeks and long story short the doctor wasn’t bothered when I returned saying it wasn’t working and during this time I exercised every spare hour and ate very little and no carbs. Only when I finally paid to see an endocrinologist who changed my tablet and the time I take it did my symptoms go and I lost all the weight. I really don’t want to go through a problem with weight gain again. I eat low carbs and about 1000 calories a day in fact my diabetic nurse says I should eat more. I also do a lot of exercise. I suppose my question is does anyone else take Levemir and is weight gain a problem and does anyone else have very varied levels and how do they manage this please? I did suggest to the nurse that maybe I should do something different every day but she seems intent on looking for a pattern and I don’t think there is one. I often eat the same dinner and sometimes before bed it’s 8 and other times it’s 13. Any help would be really appreciated, or can anyone recommend an endocrinologist specialising in LADA in Hertfordshire please. By the way I have changed doctors. Thank you for any help, feeling really fed up with it all [/QUOTE]
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