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Type 1 Diabetes
Libre on NHS
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<blockquote data-quote="donnellysdogs" data-source="post: 1561507" data-attributes="member: 17713"><p>I have complicated stomach and colon and had cancer as well. And cannot tolerate pump cannulas which meant going back to MDI.</p><p></p><p>I was told that I wouldnt get because only 1 person had got one funded. Others with loss of driving licences etc hadnt got.</p><p></p><p>They put in for exceptional funding case for me. I had to give written evidence. I sent in 11 pages of evidence and this time round full books of previous cgm data and my books that I log literally everything in.</p><p></p><p>My health team were gobsmacked that I got a further 6 months funding. To be honest, I think a lot goes on how and what details the patients give.</p><p></p><p>A libre goes in arm. I've had lymph nodes removed in both arms and it is an unknown as well for the risk of lymphodema from having a sensor lodged in arm constantly. So that should be enough for continuing for cgm in my buttocks.</p><p></p><p>Mine waant based upon living and working etc it was based upon multiple complex health issues and it was on those grounds that it was allowed. Only got 5 months left so I am constantly aware of logging everything in my life and printing off daily graphs to highlight the difficulties I have. These will go as my evidence as well. However, I have it in my brain that I have to now also again to repeat info that a libre in arm is an unknown risk for lymphodaema. </p><p></p><p>I was so offen told by my team "we dont think you'll get" that it makes me think that they are also not preparing their evidence strongly enough because they dont know us patients well enough. It is vital that patients submit good solid evidence..</p></blockquote><p></p>
[QUOTE="donnellysdogs, post: 1561507, member: 17713"] I have complicated stomach and colon and had cancer as well. And cannot tolerate pump cannulas which meant going back to MDI. I was told that I wouldnt get because only 1 person had got one funded. Others with loss of driving licences etc hadnt got. They put in for exceptional funding case for me. I had to give written evidence. I sent in 11 pages of evidence and this time round full books of previous cgm data and my books that I log literally everything in. My health team were gobsmacked that I got a further 6 months funding. To be honest, I think a lot goes on how and what details the patients give. A libre goes in arm. I've had lymph nodes removed in both arms and it is an unknown as well for the risk of lymphodema from having a sensor lodged in arm constantly. So that should be enough for continuing for cgm in my buttocks. Mine waant based upon living and working etc it was based upon multiple complex health issues and it was on those grounds that it was allowed. Only got 5 months left so I am constantly aware of logging everything in my life and printing off daily graphs to highlight the difficulties I have. These will go as my evidence as well. However, I have it in my brain that I have to now also again to repeat info that a libre in arm is an unknown risk for lymphodaema. I was so offen told by my team "we dont think you'll get" that it makes me think that they are also not preparing their evidence strongly enough because they dont know us patients well enough. It is vital that patients submit good solid evidence.. [/QUOTE]
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