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Type 1 Diabetes
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<blockquote data-quote="kev-w" data-source="post: 1714178" data-attributes="member: 452484"><p>Make a complaint to the CCG thru their 'patient relations' person, their web sites list these details (I've spent 3 months trolling mine on Twitter) <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite7" alt=":p" title="Stick Out Tongue :p" loading="lazy" data-shortname=":p" />, Work with the RMOC letter & the NHS England update they all received, same with your MP, quoting 'post code lottery' and point them towards the 2 mentioned documents, I was lucky in getting it on local radio (radio York) for a day, a decent article with interviews, every hour on the news etc,(the article is on the BBC website somewhere still for reference) you can also request to ask questions at the CCG governing body meeting.</p><p></p><p>I get the banging of ones head again a wall, yesterday when I got to our town centre for the meeting I was told it had been cancelled due to there not being enough people for a quorum due to weather, but when I left the house at 08 00 it was still on (they moved the start time to 09 15 the day before) so I gave them an ultimatum in a very soft voice as I'd managed to get there, I basically said I wasn't moving until I'd asked the questions I'd listed, and if that meant me going hypo and needing an ambulance then it would be on their toes at their too late cancelled meeting.</p><p></p><p>I left my mini meeting with the CCG commissioning statement 45 minutes later, freshly printed for me, I let the diabetes clinic know it was out and they were hoping it would be on line later yesterday.</p></blockquote><p></p>
[QUOTE="kev-w, post: 1714178, member: 452484"] Make a complaint to the CCG thru their 'patient relations' person, their web sites list these details (I've spent 3 months trolling mine on Twitter) :p, Work with the RMOC letter & the NHS England update they all received, same with your MP, quoting 'post code lottery' and point them towards the 2 mentioned documents, I was lucky in getting it on local radio (radio York) for a day, a decent article with interviews, every hour on the news etc,(the article is on the BBC website somewhere still for reference) you can also request to ask questions at the CCG governing body meeting. I get the banging of ones head again a wall, yesterday when I got to our town centre for the meeting I was told it had been cancelled due to there not being enough people for a quorum due to weather, but when I left the house at 08 00 it was still on (they moved the start time to 09 15 the day before) so I gave them an ultimatum in a very soft voice as I'd managed to get there, I basically said I wasn't moving until I'd asked the questions I'd listed, and if that meant me going hypo and needing an ambulance then it would be on their toes at their too late cancelled meeting. I left my mini meeting with the CCG commissioning statement 45 minutes later, freshly printed for me, I let the diabetes clinic know it was out and they were hoping it would be on line later yesterday. [/QUOTE]
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