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Lighting for poor vision, plus a miracle treatment
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<blockquote data-quote="ingrid" data-source="post: 2631570" data-attributes="member: 49414"><p>Hello! I think you meant proliferative retinopathy - it’s what I have too and have in the past had loads of laser. The laser itself causes the loss of vision in low light conditions unfortunately. Now I’m bleeding again in both eyes <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /> the latest approach now is injections rather than laser but that’s no good to us as we’ve already had all the laser! The injections, like the laser, help to stop any future bleeding (by shrivelling any abnormal blood vessels already there and also by preventing further new ones from growing), and that’s less destructive than the permanent effects of the laser burns, so for people just starting out on treatment for PDR (Proliferative Diabetic Retinopathy), it’s definitely the treatment of choice! As I said, alas, too late for us. I suppose I’m grateful there was at least some treatment avaliable when I was first diagnosed with PDR.</p><p></p><p>I’m also paying privately for an eye mask I wear at night - noctura400 - you can Google it. It’s supposed to do the same as the laser/injections. It’s been commissioned early this year by one NHS Trust in the country so far (in Surrey or Hampshire I can’t remember). My consultant doesn’t believe in its benefits for retinopathy, only for macula oedema, but I’m pretty convinced it can help. I’m also trying to follow a keto diet as per Dr. Bernstein’s book (Facebook DIY Retinopathy Solutions has been a mine of useful info for me ). BUT all of this is to slow down progression of the retinopathy disease, it’s not going to reverse damage already done boohoo or improve what sight we have lost as a result of previous laser treatment or bleeds. </p><p></p><p>I have an appointment coming up later this year at a low vision clinic at my hospital- you could ask if your hospital has one of those? I’ve had to wait ages for it!!! Tbh I think there’s better advice via these forums! x</p></blockquote><p></p>
[QUOTE="ingrid, post: 2631570, member: 49414"] Hello! I think you meant proliferative retinopathy - it’s what I have too and have in the past had loads of laser. The laser itself causes the loss of vision in low light conditions unfortunately. Now I’m bleeding again in both eyes :( the latest approach now is injections rather than laser but that’s no good to us as we’ve already had all the laser! The injections, like the laser, help to stop any future bleeding (by shrivelling any abnormal blood vessels already there and also by preventing further new ones from growing), and that’s less destructive than the permanent effects of the laser burns, so for people just starting out on treatment for PDR (Proliferative Diabetic Retinopathy), it’s definitely the treatment of choice! As I said, alas, too late for us. I suppose I’m grateful there was at least some treatment avaliable when I was first diagnosed with PDR. I’m also paying privately for an eye mask I wear at night - noctura400 - you can Google it. It’s supposed to do the same as the laser/injections. It’s been commissioned early this year by one NHS Trust in the country so far (in Surrey or Hampshire I can’t remember). My consultant doesn’t believe in its benefits for retinopathy, only for macula oedema, but I’m pretty convinced it can help. I’m also trying to follow a keto diet as per Dr. Bernstein’s book (Facebook DIY Retinopathy Solutions has been a mine of useful info for me ). BUT all of this is to slow down progression of the retinopathy disease, it’s not going to reverse damage already done boohoo or improve what sight we have lost as a result of previous laser treatment or bleeds. I have an appointment coming up later this year at a low vision clinic at my hospital- you could ask if your hospital has one of those? I’ve had to wait ages for it!!! Tbh I think there’s better advice via these forums! x [/QUOTE]
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