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Long-standing Type 1 signing in

Caerdobi

Active Member
Messages
27
Type of diabetes
Type 1
Treatment type
Insulin
Evening folks,

Allow me to introduce myself: I'm Vaughan, 35 years old, and I've been Type 1 for 24 years now (feels like a lifetime!). I've never joined a diabetes forum before, as I've always just kind of dealt with it as "my thing", but it's probably time I joined a community, as being insular about things has led me to miss advances in diabetes in the past.

A brief history of my medical condition:

  • Diagnosed in 1991 at age 11 after developing extreme thirst over a period of a few months, and finally going into DKA whilst on holiday in Portugal with my parents. I flew back as an emergency and went straight from the airport to the Royal Gwent Hospital in Newport, South Wales, where I was born and bred. A few hours away from diabetic coma apparently.
  • Initially put on syringes and fast & long-acting insulins separately, contained in little glass bottles from which you had to draw the requisite amount and mix up your "solution" yourself. 2 shots a day. Blood testing equipment then was this torture device of a black box with a spring-loaded arm with a "hole" at the bottom for your finger, it bloody hurt every time you did it. I then would compare whatever colour the test strip turned to a Dulux-like colour chart printed on the side of the test strip container (think this was known as BM Test 1-44?)
  • I then was moved onto a refillable pen with cartridges of pre-mixed insulin at age 15-16. This was a massive step ahead for me as it meant no mixing, but being a forgetful teenager and having only one delivery device led to some interesting moments, not least when I went to the cinema with my mates and left my pen down the back of the seat...bit of panic there! :hungover:
  • When I went to university at 18 I was put on disposable pens of Novomix 30 Flexpen, still premixed fast and intermediate insulin. 2 shots a day. My sugar control was ok through university.

And that is kind of where I stayed up until about four years ago. I had two jabs every day, had to eat a very specific amount of food at a set time every day and kind of fitted my life around my diabetes - everything you shouldn't in the modern era, really.

I wasn't what you would term a particularly "good" diabetic; not that my control was bad (I am fortunate to be able to tell when I'm >12mmol/l/ and below 4mmol/l) or that I didn't take my jabs - I did all that - but I didn't go to diabetic clinic hardly ever as often as I should have, perhaps one every two years. Terrible really. And I think having it for so long made me quite blasé about the whole thing as I dropped from testing my blood sugar every other day to perhaps once or twice a week...when I remembered... :bag: I also failed to get my eyes tested properly, I've only ever had it done twice..

Anyway, on a very infrequent trip to my local medical centre for a diabetic review, I was assigned a new diabetic nurse who was brilliant. She was aghast that I was still on what in reality was an extremely inflexible system, and immediately bumped me onto Novorapid whenever I ate and Levemir for the evening. This has been a revelation for me, I can finally eat when I like - or skip a meal if circumstances don't permit eating - without fear of dropping into hypo or keeping a nervous eye on the clock. :) OK, it means I now have 5-6 injections a day instead of two, but what a change!

That's where I am up to now.

I have a few complications which have arisen - I have retinopathy in both eyes, which is proliferative but not serious enough to require laser...yet. I have clamped down on my control quite tightly in the last 12 months and test my blood sugar quite often now, I'm determined not to lose my vision, or at least to postpone it as long as I can. Aside from that I'm fit and healthy. My BMI is 26, so I'm a little overweight but not by much - something I'm working on this year. My blood pressure is 118/78 and my resting heart rate is 82bpm, so I'm generally not bad. I also am now booked into have my retinopathy checked far more frequently.

I had a serious incident occur last Thursday where I suffered what appeared to be a heart attack and passed out at work. It turns out I had forgotten my evening Levemir the night before due to working late (first time I've ever forgotten an injection!) and my BM went through the roof the next morning (over 27 when measured). Whether this triggered the incident or not, we're still unsure. I was taken to hospital and my ECG was fine as was my test for troponin (the hormone which is released when you suffer heart damage). Because I'd suffered loss of consciousness, the doctor ordered an angiogram, where it was found that one - and only one - of my arteries was narrowed (coronary artery disease). The surgeon couldn't tell if this had caused the event or not, but he decided to stent it anyway by immediate angioplasty to mitigate any future problems. I was given the new dissolvable stents which are made of corn starch and are absorbed by the body after two years.

As a result I'm now on atorvastatin and aspirin for the rest of my life, and an anti-platelet drug and beta blockers for a year to help the stents settle. But hey what is more medicine to a diabetic, right? :)

On a personal level - I'm a Welshman so my sport is rugby, although I've been living near Portsmouth on the south coast for 13 years now for work. I'm married & have 18-month-old twin boys called Owen & Nye who keep me on my toes ;) I work in the motor industry in the technology field. I also have a keen interest in motorsport and cars in general, and own an Alfa 147 GTA which regularly breaks down and costs me lots of dosh. The wife keeps telling me to get rid, but fools and their money..

That's about enough War & Peace for now - very glad to meet you all.

Vaughan
 
Last edited by a moderator:
Hi Vaughn and welcome to the forum , keep posting it will be good to get to know you
You have had a difficult time haven't you! Glad you found this forum its the best on the net.
@ daisy1 will be along and give you the info new posters receive. ::))
 
Hello and welcome to the forum Vaughan, lovely to 'meet' you.

Best wishes RRB
 
Hi Vaughn and welcome to the forum , keep posting it will be good to get to know you
You have had a difficult time haven't you! Glad you found this forum its the best on the net.
@ daisy1 will be along and give you the info new posters receive. ::))

@Caerdobi

Hi Vaughan and welcome to the forum :) I am not sure if you need this information as you seem to have got it all sussed now, but here is the information we give to new members which I hope will be useful to you, the diet part at least. Ask any questions you want and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 130,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hello Vaughan, welcome to the forum! Let's hope that the 6th February is the precursor to the world cup that both of us want ;)
 
Hi guys, thanks for the warm welcome. :) I'm going to head over to the main Type 1 forum first as I have a few questions about bolus timing, plus the fact that I'm only on one dose of Levemir per day and I've read it drops off after 18 hours or so, which may explain why I start to see higher BG later in the day. Looks like switching to a split dose may be a good move.
 
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