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Type 1 Diabetes
Long term complications - how many have them, how many don't?
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<blockquote data-quote="Flowerpot" data-source="post: 1040829" data-attributes="member: 47217"><p>Hi [USER=259710]@Loliz[/USER]</p><p></p><p>I was referred for consideration for a pancreas/islet cell transplant due to having no hypo awareness but at about the same time I started using cgm with my Medtronic pump. I decided against the transplant route for various reasons, the chance of not making it through surgery and the potential complications from needing immunosuppressant drugs for life. I was too scared to pursue it at that time. It is a really tough call to make.</p><p></p><p>I have got quite severe complications with sight loss, Charcot foot and neuropathic bone fractures plus CKD. I also use the 640g with Enlite sensors and have felt infinitely safer with that system in place although as you say it is certainly not infallible and the ongoing fear from missing a hypo does weigh heavily. My complications hit me hard and at a relatively young age. Despite having tight control for many years since my complications started, I can't stop the express train of complications from causing ongoing issues. My consultant has talked to me about there being a genetic disposition towards complications so I presume it also works the other way round offering some degree of protection from the worst diabetes can throw at you. There is also a helping of good or bad fortune thrown in.</p><p></p><p>Losing hypo awareness is a game changer whatever age it happens and until I started going unconscious without warning and losing the chance to save myself I had no idea how much I relied on the element of self awareness that indicates something isn't quite right. I don't know what it's like to be in that position in my 60's as I haven't reached 50 yet but I do know what a hard decision it is to make about whether to consider a transplant. I wish you well with your choice.</p></blockquote><p></p>
[QUOTE="Flowerpot, post: 1040829, member: 47217"] Hi [USER=259710]@Loliz[/USER] I was referred for consideration for a pancreas/islet cell transplant due to having no hypo awareness but at about the same time I started using cgm with my Medtronic pump. I decided against the transplant route for various reasons, the chance of not making it through surgery and the potential complications from needing immunosuppressant drugs for life. I was too scared to pursue it at that time. It is a really tough call to make. I have got quite severe complications with sight loss, Charcot foot and neuropathic bone fractures plus CKD. I also use the 640g with Enlite sensors and have felt infinitely safer with that system in place although as you say it is certainly not infallible and the ongoing fear from missing a hypo does weigh heavily. My complications hit me hard and at a relatively young age. Despite having tight control for many years since my complications started, I can't stop the express train of complications from causing ongoing issues. My consultant has talked to me about there being a genetic disposition towards complications so I presume it also works the other way round offering some degree of protection from the worst diabetes can throw at you. There is also a helping of good or bad fortune thrown in. Losing hypo awareness is a game changer whatever age it happens and until I started going unconscious without warning and losing the chance to save myself I had no idea how much I relied on the element of self awareness that indicates something isn't quite right. I don't know what it's like to be in that position in my 60's as I haven't reached 50 yet but I do know what a hard decision it is to make about whether to consider a transplant. I wish you well with your choice. [/QUOTE]
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