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Long term impact of almost daily hypos & a decade of unnecessary insulin. Should I be worried?

D

Dunne79

Member
Messages
9
Type of diabetes
Type 1
Treatment type
Insulin
Hi everyone,

I hope you’re all well.

I’ve been T1D for coming up ten years this December. Throughout this time I’ve always had 4/6 hypos per week. So bad I had to quit work.
It appears that i was actually wrongly diagnosed and there’s nothing wrong with me. As such, a decade of low bloods sugars and too much insulin (DKA approx 4 times a year/ on last 18 months two seizure and unconsciousness due to insulin overdose.

Am I going to be getting any consequences of this over the coming years?

any ideas or thoughts will be tealy appreciated.
Thanks

d Xx
 
Is it actually possible to go into DKA with too much insulin? DKA happens when glucose is very high and doesn't get absorbed at all and your body can't process any, so you start burning fat with crazy rate and your blood becomes acidic. Are you sure it was actually DKA?

Didn't you have like check ups? Surely with insulin injections your HA1C should be very low if your body is still producing it and you experience multiple hypos a week? Didn't your doctor check basic stuff on diagnosis? If you actually were misdiagnosed it is severe malpractice and I would seek huge compensation. Severe hypos can cause permanent damage to your neurological
 
So am i getting this right?

U do not have diabetes and they thought u had diabetes for 10 YEARS.

On top of that u they gave u insulin.

What other tests said like every single hba1c test u had what did they show?
 

Hi,

Do you know what your ketone levels were when you had the low seizures?
 
Hi @Dunne79
The big question to me is what is causing these DKAs?
Hypos can be damaging but I would have thought you'd have to have lots of severe ones for this?

But I've never heard of anyone getting ketoacidosis through excess insulin, it's normally caused by too little insulin, so in your position I'd concentrate on identifying what is causing the DKA (which I would have thought was potentially at least as damaging as the hypos) before anything else.

Have you now had official notification from your medical team that you have no form of diabetes??? Hopefully you can see a specialist again to push on what is causing the DKAs?

Good luck. I'm sorry this has happened to you (the misdiagnosis).

(Edited to add, though I guess it's wonderful news if this means that you are now perfectly healthy).
 
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