Kath said:I am now 63 years old and was diagnosed with type 1 when I was 8 months old. At that time in history it was recognised that many diabetic children were dying as a result of lack of proper care in their family's. A decision wasmade to open, I believe 4 specialist childrens homes, to teach the children to be able to manage their own diabetes care. I wasa child believed to be at risk and at five (?) years old wasplaced into a home in Kingsdown, nr Deal, Kent, known as St Monica's. It was run by, what was then called the Church of England Children's Society (later to become the Children's Society). It was a lovely caring environment for boys and girls. We used to check our blood sugars over a bunsen burner and we were all on 80 Lente insulin. We were taught to calculate our food on a carbohydrate basis and I have continued that principle ever since. I moved to a different children's home in Salford, again run by the same organisation called St Georges, when In was 11 years old. (There must be many people out there having experience of both homes.) This was a boys only homeand again the insulin regime was 80 Lentefor all the boys. I left at 16 years old, returning to my family home. I have always been a keen sports person and the early cotton wool protections I experienced made me very competitive. I played football up to 51yearsof age, have run several marathons and half marathons andcurrently enjoy cycling and Pilates. I have no health problems, my control is fine, although hypos can occur if I get it wrong after intense exercise but I love my active lifestyle. One ambition I have is to attempt John O'Groats to Lands End on my bike when I retire in 18 months time. Not the longest but I haveenjoyed and continue to enjoy a full and rewarding life.
Joslin's 50-year medalists are invited to participate in a special study, examining outcomes of long-term diabetes. The study attempts to understand what factors contribute to the longevity of individuals who have received this honor. Currently, over 400 medalists are interested in participating in the study. To date, over 300 of these have completed an extensive questionnaire about their life with diabetes. Data from this questionnaire suggest that the risk of kidney, eye, and nerve problems is different after 50 years with type 1 diabetes than the risk among all individuals with the disease.
A second study is currently being undertaken, which examines factors in the blood and DNA that may help in modifying the risk for complications and survival. Participation in this study is open to all individuals residing in the United States who have received the Joslin 50-Year Medal. In coming months, updates for this study and findings from the previous study will be posted on a separate Web site. For further information on participating in this study, or for further information on the 50-Year Medal, e-mail
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