@Robinredbreast I googled Pregabalin. It's use to treat diabetic neuropathy, so it isn't to control the diabetes as such. I am wondering what Vicky's doctor did to help her with her diabetes control when the neuropathy started. I would have thought that great BG control would have been an absolute must when a person so young gets neuropathy as better control could help the situation. Pregabalin only masks the symptoms it doesn't treat the cause which is blood glucose levels that are too high, or which swing too much from high to low and back again.
I've read a few people's accounts of neuropathy symptoms temporarily worsening as tighter control is achieved, then improving,so I'm wondering if this is happening in your case ?
That must be Omnipod as I don't have any complications
In the last few months I've managed to really get on top of things and my control is better than it has been in years. However my neuropathy symptoms have suddenly changed and gone much worse. I can no longer tell whether things are hot or cold, sharp or blunt; basically there's very little sensation there at all now from the ankle down, although it's actually affecting my lower leg above the ankle too.
Hello vicky, just got in and reading your post, 1 st i had very painful neuropathy in both my feet , felt like i was walking on razors,hot and then numb etc,that was back in sept14, but since finding this forum and with the help and advice of these wonderful people here, i have managed to reverse it,it took about 5 months to achieve but by lchf regime its gone now i'm ok.Hi I am fairly new to this but thought I'd come here to see if anyone could give me any advice / optimism.
I'm 29 and have had Type 1 Diabetes since I was 14. I've struggled for years to be able to control it, and developed some mild neuropathy in my feet in my early 20s, which until recently was controlled with a low dose of Pregabalin and never caused me any issues. In the last few months I've managed to really get on top of things and my control is better than it has been in years. However my neuropathy symptoms have suddenly changed and gone much worse. I can no longer tell whether things are hot or cold, sharp or blunt; basically there's very little sensation there at all now from the ankle down, although it's actually affecting my lower leg above the ankle too. There's no pain as there used to be so increasing the Pregabalin dose probably wouldn't help. I'm so scared about how this is going to progress and affect me in the future, so I just wondered if there was anyone else that has experienced this and if so how they manage it; It'd be even better to hear anyone's stories about how they've managed to improve things and regain some, if not all, of the sensation where numbness had taken over. No negative stories/comments please - I believe in the body's ability to heal itself so would welcome replies from positive people who share similar beliefsThanks, Vicky
Yes it was puzzling until i got a real explanation from dr bernstein, this reassured me and helped me continue on with lchf regime, my last hba1c in march was 5.2% my doc said hmmm bit low we'll have to get it up a bit.......Yes my leg has been very painful at times, then after each bout of pain I realise I have recovered a bit more feeling in the part which was numb.
@Clivethedrive I'm so glad LCHF worked for you
Yes it was puzzling until i got a real explanation from dr bernstein, this reassured me and helped me continue on with lchf regime, my last hba1c in march was 5.2% my doc said hmmm bit low we'll have to get it up a bit.......
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