fluteduet9
Member
- Messages
- 11
- Type of diabetes
- Reactive hypoglycemia
- Treatment type
- Diet only
Hi, all,
I have RH, just newly discovered. I've had hypos for many years. Recently they've gotten worse. Last May my doctor recommended getting a glucose monitor. I've recorded numbers as low as 39 (USA), but the problem with the monitor was I wasn't seeing the whole picture. I'd miss the initial spike and just see the lows. But 2 weeks ago my NEW doctor got me a Freestyle Libre and it was a lightbulb moment. I could see the high GI carb meals spiking my sugars up to nearly 200, then plummeting to extreme lows. Wow. Ain't technology wonderful?
Anyway, the reason for my post..... do any of you with RH have low A1C numbers? I keep reading that RH is potentially pre-diabetes. My A1C is 4.8. Obviously it's not dangerously low, but it's certainly lower than what I've seen as "normal". Anyone else have numbers in the sub-5 percent range?
But 2 weeks ago my NEW doctor got me a Freestyle Libre and it was a lightbulb moment. I could see the high GI carb meals spiking my sugars up to nearly 200, then plummeting to extreme lows. Wow. Ain't technology wonderful?
Hi and welcome!
I get the double spike. The second is always lower.
I speculate that one of three things is happening:
1 my insulin releases in bursts
2 my insulin resistance hikes in bursts
3 my glucagon releases in bursts
Of course, I can’t test any of these. And there may be another explanation...
Hi, Brunneria -- I was hoping you'd chime in on this. From reading some of your other posts, I suspect we are very similar. I've been gluten free for 9 years now after going through he-double-hockey-sticks trying to figure out what was wrong with me. Bad digestive issues plus ever-worsening peripheral neuropathy. Then found some medical papers online linking gluten sensitivity and neuro symptoms. Went gluten free and resolved the digestive issues. The neuropathy has improved noticeably over the years but is still with me a bit. I did a gluten challenge for 2 months back then and the neuropathy was excruciating. No coeliac, thankfully, but definitely sensitive. To this day, I know when I've been "glutened", usually by a restaurant, by the digestive reaction and the neuropathy pain increase. Weird, huh?
I wanted to ask about your Freestyle Libre. Do you still test your blood glucose? If so, do you find the Libre to be accurate? Mine seems to be consistently low as compared with my Bayer Contour meter, even accounting for the 5-15 minute lag time between blood and insterstitial fluid. It seems to be especially inaccurate in the lower ranges. Does yours do that?
I don’t find it accurate on the highs, lows, and specific numbers. My sensors usually show numbers 0.5-1.0 mmol/l lower than my prick tests (assuming they are accurate).
However, once I know how low a sensor reads, i just allow for it.
And it is MARVELLOUS for showing detail on the graph line. The dip at 2.30 am that explains why i wake up sweating. The impact that 2 squares of dark choc has (none) as opposed to 4 squares (less than 1mmol/l) as opposed to 6 squares (2-3mmol/l).
Knowing that, makes portion control soooo much easier! Lol
The two subsequent smaller spikes... were they meals or rebounding?
Makes sense and I totally relate. Thanks for reply.Those were meals/snacks that followed the intense hunger/trembling triggered by the hypo...
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