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Maculopathy, frightened and confused
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<blockquote data-quote="JennR" data-source="post: 2527314" data-attributes="member: 557406"><p>Hi, I am going through the mill a bit at the moment, I hope someone can provide me with a little reassurance.</p><p></p><p>I had no idea I could be diabetic until March of this year until a routine eye test and OCT scan. The optician said she could see pre-proliferative changes in my eyes and said she would refer me to the hospital. My GP was also to check me for diabetes and high blood pressure. This frightened me a lot so I immediately went on a low carb diet and when my doctor tested my HbA1c it was 47 which she said was in the pre-diabetic range. It may however have been much higher previously - we don't know how high and how long.</p><p></p><p>The hospital referral never materalised - despite ringing them they said no appointment has been made. Under the new system a consultant refers all cases and decides who needs to be seen and who doesnt. But although the referral was on the system it had not been actioned.</p><p></p><p>Fast forward to this week and I had my first retinopathy screening and got the results today and I have maculopathy. I have been referred to the eye hospital for assessment.</p><p></p><p>Right now I am terrified. No mention was made of maculopathy on the original referral letter in March and it would have shown on the OCT scan. I wasn't warned of the dangers of reducing my blood sugar too quickly - either by the optician or the GP. </p><p></p><p>Since receiving the letter I just feel sick and have been in tears. My mental health is not good at the moment anyway and tbh I just feel like it would be better if I wasn't here. All I can see in my future is blindness. Can anyone give me any hope?</p></blockquote><p></p>
[QUOTE="JennR, post: 2527314, member: 557406"] Hi, I am going through the mill a bit at the moment, I hope someone can provide me with a little reassurance. I had no idea I could be diabetic until March of this year until a routine eye test and OCT scan. The optician said she could see pre-proliferative changes in my eyes and said she would refer me to the hospital. My GP was also to check me for diabetes and high blood pressure. This frightened me a lot so I immediately went on a low carb diet and when my doctor tested my HbA1c it was 47 which she said was in the pre-diabetic range. It may however have been much higher previously - we don't know how high and how long. The hospital referral never materalised - despite ringing them they said no appointment has been made. Under the new system a consultant refers all cases and decides who needs to be seen and who doesnt. But although the referral was on the system it had not been actioned. Fast forward to this week and I had my first retinopathy screening and got the results today and I have maculopathy. I have been referred to the eye hospital for assessment. Right now I am terrified. No mention was made of maculopathy on the original referral letter in March and it would have shown on the OCT scan. I wasn't warned of the dangers of reducing my blood sugar too quickly - either by the optician or the GP. Since receiving the letter I just feel sick and have been in tears. My mental health is not good at the moment anyway and tbh I just feel like it would be better if I wasn't here. All I can see in my future is blindness. Can anyone give me any hope? [/QUOTE]
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