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Type 1 Diabetes
MDI Regime no longer works, but no funding for pump!
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<blockquote data-quote="Vikki2" data-source="post: 218845" data-attributes="member: 25049"><p>Oh, I'm so mad on your behalf...</p><p>Yes, we have experienced a very similar thing. When the 'honeymoon' period finished we lost all control of my 6 yr old daughter's diabetes (she was 5 then). It was an awful time. The consultant said she desperately needed to be on a pump but that there was an issue with funding. So we 'went into battle'.</p><p>Firstly, please don't be scared of the pump. All I can tell you is our experience but it has honestly been the best thing ever. She's been on the pump 1 yr now. It's brought back into our lives 'normality', spontaneity & flexibility. She has great control and an Hba1c under 7. You don't just 'hook up & go' though. Be prepared for a lot of hard work at the beginning to get it right but once you do you won't look back.</p><p>We 'fought' non stop for 6 months until they gave us a pump. We got good advice from Input and from IPAG (Scottish equivalent); contacted MSP's; Scottish Parliament; the press and anyone we could think of. In the week leading up to their decision to give us a pump they must have been receiving calls & emails every single day on our behalf. We had some back up plans: I spoke to my GP who was willing to refer us elsewhere. This included London – we live outside Edinburgh but were willing to travel anywhere. Basically, every single day I contacted someone for help. </p><p>I also have a friend in the middle of the same battle on behalf of her daughter and in addition to this she is contacting successful entrepreneurs & businesses in her area to see if they would be willing to sponsor them.</p><p>Plus I have heard of someone who got a pump the minute she said she wanted to start a family.</p><p>I wish you every luck in this.</p><p>Keep strong</p><p>Vikki</p></blockquote><p></p>
[QUOTE="Vikki2, post: 218845, member: 25049"] Oh, I'm so mad on your behalf... Yes, we have experienced a very similar thing. When the 'honeymoon' period finished we lost all control of my 6 yr old daughter's diabetes (she was 5 then). It was an awful time. The consultant said she desperately needed to be on a pump but that there was an issue with funding. So we 'went into battle'. Firstly, please don't be scared of the pump. All I can tell you is our experience but it has honestly been the best thing ever. She's been on the pump 1 yr now. It's brought back into our lives 'normality', spontaneity & flexibility. She has great control and an Hba1c under 7. You don't just 'hook up & go' though. Be prepared for a lot of hard work at the beginning to get it right but once you do you won't look back. We 'fought' non stop for 6 months until they gave us a pump. We got good advice from Input and from IPAG (Scottish equivalent); contacted MSP's; Scottish Parliament; the press and anyone we could think of. In the week leading up to their decision to give us a pump they must have been receiving calls & emails every single day on our behalf. We had some back up plans: I spoke to my GP who was willing to refer us elsewhere. This included London – we live outside Edinburgh but were willing to travel anywhere. Basically, every single day I contacted someone for help. I also have a friend in the middle of the same battle on behalf of her daughter and in addition to this she is contacting successful entrepreneurs & businesses in her area to see if they would be willing to sponsor them. Plus I have heard of someone who got a pump the minute she said she wanted to start a family. I wish you every luck in this. Keep strong Vikki [/QUOTE]
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MDI Regime no longer works, but no funding for pump!
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