Misdiagnosed?

I'm sure the consultant will be interested to hear about your good control. Wait and see what the hospital team have to say about your diabetic status (type 1, type 2, they might even consider genetic testing for MODY) but I really wouldn't be overly concerned about a "misdiagnosis" being on insulin treatment won't have done you any harm and will have allowed you to maintain the excellent control that you have.

Big_Col said:

I've been registered with several small GPs and have always been dealt with in house.

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I would say that's quite unusual. A Consultant will be far better placed to recommend the most appropriate insulin for you, help with dose adjustment, etc. When you said how long you'd been diagnosed, I was surprised you didn't count carbs. This might explain why.

I only see my consultant once a year, but the difference in knowledge between them and the 'diabetes nurse' at my surgery is huge.

catapillar said:

You have never seen an endocrinologist in 15 years of type 1? Even on diagnosis?

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Lol I went 40 years without seeing anyone which I much prefer just to keep the peace I see an endo for 10 mins once a year and chat about the weather.

Also might explain why you are on humalin s & I - the consultant might be able to suggest a better/more up to date insulin regime to go with an active lifestyle.

catapillar said:

Also might explain why you are on humalin s & I - the consultant might be able to suggest a better/more up to date insulin regime to go with an active lifestyle.

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Why ever would he do that if OP has good control using what he does now? It isn't broke so don't fix is my motto

CarbsRok said:

Lol I went 40 years without seeing anyone which I much prefer just to keep the peace I see an endo for 10 mins once a year and chat about the weather.

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Well yeah, it can feel like a waste of time but it's nice to have the option of actually seeing a specialist - rather than the GP as I find it most disconcerting when my GP googles stuff during my appointments to answer my diabetic questions, as, obviously, I could actually do that at home so the waste of time is somewhat more underlined!

I see you're on Humulin? Is that by choice? I've never taken that insulin but I believe it's a regular one not one of the newer analogues

Big_Col said:

I've lived in Scotland, North, East, South and West of England. Can't be that unusual!

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I think the bit about never having seen a consultant is. Youre obviously doing well so thats fantastic

But do take the opportunity to quiz the consultant when you see them, and then you can judge whether you want to start regular appointments with them or not

@catapillar mentioned the newer insulins and that might be something you'd be interested in hearing about.

My consultant is great, and I also appreciate the Diabetes Centre at my local hospital. The DSNs there are excellent. I was sceptical at first (mainly because I don't like hospitals and its a bit of a trek) but it's nice to know I have that regular check up there.

If you do see a consultant and get feedback on your diabetes type, I'm sure you can choose to be seen wherever you want, but it's always good to have options even if you choose not to take them, I think

Well a little bit of scepticism is very healthy! & you are obviously doing very well without, but you don't know what you don't know so it might be helpful to have a chat with the the consultant to resolve the issue re the diabetic status.

On a scale of specialism the endocrinologist will be more expert than the GP nurse, not as expert as you

I think the OP proves the point I made on here a few weeks ago. A lot of us older diabetics were switched into MDI without any training and we had BETTER control before, on fixed and mixed insulins. There have been a few posters on here lately on older forms of treatment but with very good control.

Personally, I think your DN is an incompetent moron who should be fired.

Your Total Daily Dose is entirely normal for a diabetic with a manual job. But it would kill a non-diabetic with a manual job in, I'd guess, less than a day, less than half a day, even.

So she's not competent to be a Diabetes Nurse.


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RuthW said:

I think the OP proves the point I made on here a few weeks ago. A lot of us older diabetics were switched into MDI without any training and we had BETTER control before, on fixed and mixed insulins. There have been a few posters on here lately on older forms of treatment but with very good control.

Personally, I think your DN is an incompetent moron who should be fired.

Your Total Daily Dose is entirely normal for a diabetic with a manual job. But it would kill a non-diabetic with a manual job in, I'd guess, less than a day, less than half a day, even.

So she's not competent to be a Diabetes Nurse.


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To be fair, and granted this is through slightly gritted teeth because I can't really see where the nurse is coming from (but then, I'm not a nurse):

1. She isn't a diabetes nurse, she's a GP practice nurse
2. I don't thing she was suggesting that OP isn't diabetic, just that he might not be type 1 (this is where I can't really see where she's coming from, but I have no medical training or access to any real information about the OP, so my confusion is probably not that valid)

Let's not strop around demanding real life people in actual jobs are fired just because we can be anonymous nutters on an Internet forum!

... First paragraph of your post was really interesting though

catapillar said:

To be fair, and granted this is through slightly gritted teeth because I can't really see where the nurse is coming from (but then, I'm not a nurse):

1. She isn't a diabetes nurse, she's a GP practice nurse
2. I don't thing she was suggesting that OP isn't diabetic, just that he might not be type 1 (this is where I can't really see where she's coming from, but I have no medical training or access to any real information about the OP, so my confusion is probably not that valid)

Let's not strop around demanding real life people in actual jobs are fired just because we can be anonymous nutters on an Internet forum!

... First paragraph of your post was really interesting though

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If she isn't a DN she's in no position to make that kind of announcement, either. There are some 'vulnerable' patients who will rush home and chuck their insulin in the bin on that kind of 'news'. She was bl%#dy irresponsible. And it would be sensible for the GP to issue her with a warning, or send her for a bit more training at least.

I don't take kindly to being called a 'nutter on the Internet' by the way. Especially on this site where I have witnessed some really vicious 'dressings down' of young diabetics who come for help by real old-school authoritarians and LCHF fanatics. These days I hardly ever come by because of that.

The unsupportive atmosphere on this forum is getting worse and worse every month that goes by.


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RuthW said:

I don't take kindly to being called a 'nutter on the Internet' by the way.

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I'm sorry.

You are right to not take kindly to that. Not that it was in any way intended to be a dressing down and I'm really very sorry that it was taken like that - you are absolutely right to have expressed your displeasure at the way I expressed myself. It was thoughtless and I am sorry.

I really hope that my post wasn't taken as vicious or unsupportive. I would really be devasted if it was.

Really my post came from a concern that it is really very easy to make statements like the nurse should be fired/disciplined etc from a really very removed position via the forum without the full picture and I just wanted to add some caution to that kind of approach.

Apologies, again.