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Diabetes Discussion
Type 1.5/LADA Diabetes
MODY, after 20 years of Type 1
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<blockquote data-quote="MikeEMike" data-source="post: 1946879" data-attributes="member: 497519"><p>Hi guys, long time lurker, rare poster.</p><p></p><p>Been feeling crook lately. Close to a year now. Constipation, cramps, blood in bowels, lethargy and depression. I haven't really had much faith in doctors so I have been putting off going to one (every doctor tells me something different).</p><p></p><p>Diagnosed type 1 in 1998 and put on long acting and short acting. I was tested for C-pep at the time and I remember the test confirmed I was Type 1.</p><p></p><p>From the ages of 15-18 I took no insulin at all and ate sugar like you would expect a teenager to.</p><p></p><p>At 18 I saw a doctor again and he put me on Mixtard 70/30. I have been on this regimen since then. I'm now 33.</p><p></p><p>So I found a new GP recently and told him what was going on. When he heard I was on Mixtard he raised a red flag. This combined with 3 years without insulin led him to believe I have MODY. After a full battery of tests, blood, feces and urine, everything came back fine. A1C was 7.1, and 5.7 before that. Still awaiting GAD results. But my c-pep was 0.2 (at least this is what I briefly saw on his computer screen). He explained that a Type 1 would be zero, as this is evidence that my body is producing some insulin?</p><p></p><p>Anyway, he changed me to a super long acting insulin, Toujeo, and said once I find the right dosage he will introduce a pill (can't remember the name) and eventually phase out the insulin. He said that by removing the short acting insulin from my injections it would convince my body to start releasing my own insulin again, as the Mixtard has been suppressing it.</p><p></p><p>Is this too good to be true? Have I been injecting for 20 years unnecessarily? </p><p></p><p>I only got brief explanations and it has me left with questions. Particularly:</p><p></p><p>Are the health risks associated with MODY less than with Type 1?</p><p>Can my diet be relaxed a bit to include the occasional dessert?</p><p>Have I been explained MODY properly and, to any health professionals, do you think his suspicions are accurate?</p><p></p><p>Thanks in advance,</p><p>Mike</p></blockquote><p></p>
[QUOTE="MikeEMike, post: 1946879, member: 497519"] Hi guys, long time lurker, rare poster. Been feeling crook lately. Close to a year now. Constipation, cramps, blood in bowels, lethargy and depression. I haven't really had much faith in doctors so I have been putting off going to one (every doctor tells me something different). Diagnosed type 1 in 1998 and put on long acting and short acting. I was tested for C-pep at the time and I remember the test confirmed I was Type 1. From the ages of 15-18 I took no insulin at all and ate sugar like you would expect a teenager to. At 18 I saw a doctor again and he put me on Mixtard 70/30. I have been on this regimen since then. I'm now 33. So I found a new GP recently and told him what was going on. When he heard I was on Mixtard he raised a red flag. This combined with 3 years without insulin led him to believe I have MODY. After a full battery of tests, blood, feces and urine, everything came back fine. A1C was 7.1, and 5.7 before that. Still awaiting GAD results. But my c-pep was 0.2 (at least this is what I briefly saw on his computer screen). He explained that a Type 1 would be zero, as this is evidence that my body is producing some insulin? Anyway, he changed me to a super long acting insulin, Toujeo, and said once I find the right dosage he will introduce a pill (can't remember the name) and eventually phase out the insulin. He said that by removing the short acting insulin from my injections it would convince my body to start releasing my own insulin again, as the Mixtard has been suppressing it. Is this too good to be true? Have I been injecting for 20 years unnecessarily? I only got brief explanations and it has me left with questions. Particularly: Are the health risks associated with MODY less than with Type 1? Can my diet be relaxed a bit to include the occasional dessert? Have I been explained MODY properly and, to any health professionals, do you think his suspicions are accurate? Thanks in advance, Mike [/QUOTE]
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