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MODY - anyone else out there?
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<blockquote data-quote="Sophie25Mody" data-source="post: 2388011" data-attributes="member: 541452"><p>Hi Alice!</p><p></p><p>Fellow HNF4A MODY person here!</p><p></p><p>I was diagnosed as a Type 2 initially when I was 20 and it's taken 5 years of curious doctors to finally get tested for MODY and voila... HNF4A! My dad is classed as T2D but is awaiting his genetic results to see if he is MODY. Neither of my siblings have the gene (lucky them!).</p><p></p><p>Originally I was diet controlled, then moved to metformin for a while but my sugars shot up and I was put on canagliflozin and gliclazide which have now stabilised me! I'll be totally honest, I struggled mentally with being labelled as a diabetic and ignored it for the first 4 years of my life before finally trying to control it in the past 18 months.</p><p></p><p>I've found that I get extremely sensitive to gliclazide when I exercise, even if only for 20 minutes. My BG will plummet and is sometimes difficult to get back up (great excuse to eat some chocolate though!). </p><p></p><p>When I go low, I also get very panicked and nervous, so end up significantly overeating to try and make my BG rise back to normal levels, often overshooting and going high... I've recently self-funded a freestyle libre 2 which I'm finding really useful to alert me to lows, as well as to figure out what foods work well for me.</p><p></p><p>Without wanting to pry, have you changed your birth control method? I've heard of many women seeing increased insulin sensitivity when changing or stopping birth control? Just a thought to consider!</p></blockquote><p></p>
[QUOTE="Sophie25Mody, post: 2388011, member: 541452"] Hi Alice! Fellow HNF4A MODY person here! I was diagnosed as a Type 2 initially when I was 20 and it's taken 5 years of curious doctors to finally get tested for MODY and voila... HNF4A! My dad is classed as T2D but is awaiting his genetic results to see if he is MODY. Neither of my siblings have the gene (lucky them!). Originally I was diet controlled, then moved to metformin for a while but my sugars shot up and I was put on canagliflozin and gliclazide which have now stabilised me! I'll be totally honest, I struggled mentally with being labelled as a diabetic and ignored it for the first 4 years of my life before finally trying to control it in the past 18 months. I've found that I get extremely sensitive to gliclazide when I exercise, even if only for 20 minutes. My BG will plummet and is sometimes difficult to get back up (great excuse to eat some chocolate though!). When I go low, I also get very panicked and nervous, so end up significantly overeating to try and make my BG rise back to normal levels, often overshooting and going high... I've recently self-funded a freestyle libre 2 which I'm finding really useful to alert me to lows, as well as to figure out what foods work well for me. Without wanting to pry, have you changed your birth control method? I've heard of many women seeing increased insulin sensitivity when changing or stopping birth control? Just a thought to consider! [/QUOTE]
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