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MODY - anyone else out there?
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<blockquote data-quote="Sophie25Mody" data-source="post: 2388038" data-attributes="member: 541452"><p>My libre costs around £100 a month (2 sensors are needed a month and then I use my smartphone as the reader). I'm fortunate enough to be able to afford this as I know that I'm not eligible for this on the NHS, but the information its provided me has been invaluable! You can get a sensor for free (14 day trial) from the Abbott laboratories website to see if you are interested in using it long-term .</p><p></p><p>I found out about MODY through my doctors. I became the topic of conversation at my practice since I was the youngest patient to be diagnosed T2 but didn't fit T1 or T2 characteristics. My doctor asked to speak about my case with the diabetes genetic team at St Thomas' hospital in London. They agreed to refer me for further testing and that's how my MODY result came about. My dad is currently being tested for MODY as he has been T2 for 25 years and my grandad was T2 as well (now suspected to be MODY) but progressed to insulin later on in life.</p><p></p><p>There is a great, small MODY community on Instagram who I have found invaluable to learn from and hear others experiences. @livingwithmody has HNF4A and may be able to share some further advice on what you are experiencing with your BG. With so many different things able to affect your BG it's so difficult to pinpoint what the exact causes are for the changes. Definitely feels like playing detective or putting together a never ending puzzle!</p></blockquote><p></p>
[QUOTE="Sophie25Mody, post: 2388038, member: 541452"] My libre costs around £100 a month (2 sensors are needed a month and then I use my smartphone as the reader). I'm fortunate enough to be able to afford this as I know that I'm not eligible for this on the NHS, but the information its provided me has been invaluable! You can get a sensor for free (14 day trial) from the Abbott laboratories website to see if you are interested in using it long-term . I found out about MODY through my doctors. I became the topic of conversation at my practice since I was the youngest patient to be diagnosed T2 but didn't fit T1 or T2 characteristics. My doctor asked to speak about my case with the diabetes genetic team at St Thomas' hospital in London. They agreed to refer me for further testing and that's how my MODY result came about. My dad is currently being tested for MODY as he has been T2 for 25 years and my grandad was T2 as well (now suspected to be MODY) but progressed to insulin later on in life. There is a great, small MODY community on Instagram who I have found invaluable to learn from and hear others experiences. @livingwithmody has HNF4A and may be able to share some further advice on what you are experiencing with your BG. With so many different things able to affect your BG it's so difficult to pinpoint what the exact causes are for the changes. Definitely feels like playing detective or putting together a never ending puzzle! [/QUOTE]
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