Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Type 1 Diabetes
Muscle pain, fatigue and brain fog
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="Celsus" data-source="post: 1580583" data-attributes="member: 185674"><p>Hi [USER=345386]@DCUKMod[/USER], yes indeed, the thyroid levels have been checked thoroughly, nothing wrong there at all.</p><p>Likewise unfortunately for the Coeliac Disease and gluten intolerance.</p><p>Been in this quack mire now for 2+ years and still no firm answers or hint of diagnosis. As you say, one should probably be very happy that all tests have come back negative so far, as some of the stuff they tested initially were indeed with rather short term end-of-life consequences. </p><p></p><p>Still frustrating though as not feeling back at the 100% one used to feel 24/7 despite the diabetes-monster as companion for life. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /></p><p>You wrote that your rheumatologist still proposed to go off the gluten despite the results came back negative.</p><p>Does that mean that a negative result alone cannot be trusted? Aka, a false negative? I thought you could only have false positives for that test, but happy to learn more? Can certainly see that several of the symptoms matches my situation. Personally I have no problem with the discipline regarding diet constraints, though perfectly understand it can be challenging especially as I travel abroad non-stop. But if that could help to eradicate the symptoms, I would go for it any day. I thought also you needed first a full genetic test of the HLA DQ2 and the DQ8 gene pairs, where you would need to have at least one of these being positive to have Celiac Disease? And if any of those came back positive, you should get a biopsy done of your small intestine to confirm? As far as I understand, my genetic testing came back with negatives on both genes. So no purpose to go onto the biopsy.</p><p></p><p>Fingers crossed also for your diagnostic.</p><p>The Rheumatologists are typically the most brainy and systematically thorough of any doctor, so you should be in good hands!</p></blockquote><p></p>
[QUOTE="Celsus, post: 1580583, member: 185674"] Hi [USER=345386]@DCUKMod[/USER], yes indeed, the thyroid levels have been checked thoroughly, nothing wrong there at all. Likewise unfortunately for the Coeliac Disease and gluten intolerance. Been in this quack mire now for 2+ years and still no firm answers or hint of diagnosis. As you say, one should probably be very happy that all tests have come back negative so far, as some of the stuff they tested initially were indeed with rather short term end-of-life consequences. Still frustrating though as not feeling back at the 100% one used to feel 24/7 despite the diabetes-monster as companion for life. ;) You wrote that your rheumatologist still proposed to go off the gluten despite the results came back negative. Does that mean that a negative result alone cannot be trusted? Aka, a false negative? I thought you could only have false positives for that test, but happy to learn more? Can certainly see that several of the symptoms matches my situation. Personally I have no problem with the discipline regarding diet constraints, though perfectly understand it can be challenging especially as I travel abroad non-stop. But if that could help to eradicate the symptoms, I would go for it any day. I thought also you needed first a full genetic test of the HLA DQ2 and the DQ8 gene pairs, where you would need to have at least one of these being positive to have Celiac Disease? And if any of those came back positive, you should get a biopsy done of your small intestine to confirm? As far as I understand, my genetic testing came back with negatives on both genes. So no purpose to go onto the biopsy. Fingers crossed also for your diagnostic. The Rheumatologists are typically the most brainy and systematically thorough of any doctor, so you should be in good hands! [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Type 1 Diabetes
Muscle pain, fatigue and brain fog
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…