rstonepal
Well-Known Member
- Messages
- 57
- Location
- Mira Mesa, CA
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
- Diabetic Educators, people who do not listen, people who do not actively try to make their situation better, people who think I am in their textbook, people who think I am a standard T1D.
I was not sure which forum to post this in, this one seems correct.
Over the 51+ plus of my T1D life, I have had very few heroes. The ones that I do have, however, have made my life the amazingly shiny, wonderful and happy place it is. I am always thrilled when I find a person with a condition that does not just rely on their medical staff to keep them alive and happy, but actively knows down inside, there is a better way, find it.
My first hero is and was my sister Cat. Do not judge my Mom here, she raised us as she was raised, as my Grandmother was raised and that is all they knew. My Mother was a wee bit abusive. She would lock me in the closet for wetting my pants. That is the least of her parenting style. Cat always tried to protect me. She would change the bed sheets in the middle of the night and try to hide them so I did not get beaten. Mom always knew, we always do
When we would go for day long jaunts, my sister always ran for what seemed like miles to get me something sugary. I also have a little sister who tells me to drink juice when my BG is rising. Cat is now an RN. She failed her first Diabetic class as she answered based upon me. I told her to not do that, learn what is textbook.
My second hero is my husband Andy. We have been together for 26 years this month. We, of course, began as most young couples, not trusting each other. I never thought he would leave me due to T1D tho. 5 years ago I developed Diabetic Gasteroparesis, rather, Delayed Gastric Emptying and is the most painful thing a human can withstand. At least I think so. The first time I went into DGP, Andy was terrified T1D was claiming me. The pain and worry on his face still hurts. He changed. He is constantly researching Diabetes. He brings home food he hopes I can eat, he makes sure everything I can keep down is in the fridge, he takes me everywhere, he argues and protects me against doctors. When I want something, he lets me have it. He bought a Disney Production Cel of Malificent for me, he found my Pink Jeep, he found my perfect house, he loves me. I am quite hard headed, he knows this and has developed ways to get me to do what he wants, sit down. His official name is,,,,, Attila.
Finally, my daughter. She just turned 19. At 8 mos. preg, I was lectured on how selfish I am and I should abort this child. She was 100% going to be mentally and physically deformed. I told that, um, woman no, she feels fine and on her due date she arrived, perfect. 19 years later, she is 5'5", long blond hair, beautiful blue eyes like her Dad, and porcelain skin. She is able to take care of me when I am unable to do so. I constantly have my T1D in the back of my mind, kind of like breathing. I figure I don't fret over it, no one else is either, there is no reason to do this. I realized, at the end of her Senior year, she is living T1D in a different manner and since I am her Mother, she is terrified. To sum it up, she did not know what she would find when she woke up and when she would come home. Teenagers have very bad angst and I added to hers. What an amazing kid to never have let me know this fear. She did not wan to cause me stress. She is in University for Neuroscience and wants to find a University in Hungary that has this as a field of study.
I try to let them know this on a daily basis.
Over the 51+ plus of my T1D life, I have had very few heroes. The ones that I do have, however, have made my life the amazingly shiny, wonderful and happy place it is. I am always thrilled when I find a person with a condition that does not just rely on their medical staff to keep them alive and happy, but actively knows down inside, there is a better way, find it.
My first hero is and was my sister Cat. Do not judge my Mom here, she raised us as she was raised, as my Grandmother was raised and that is all they knew. My Mother was a wee bit abusive. She would lock me in the closet for wetting my pants. That is the least of her parenting style. Cat always tried to protect me. She would change the bed sheets in the middle of the night and try to hide them so I did not get beaten. Mom always knew, we always do
When we would go for day long jaunts, my sister always ran for what seemed like miles to get me something sugary. I also have a little sister who tells me to drink juice when my BG is rising. Cat is now an RN. She failed her first Diabetic class as she answered based upon me. I told her to not do that, learn what is textbook.My second hero is my husband Andy. We have been together for 26 years this month. We, of course, began as most young couples, not trusting each other. I never thought he would leave me due to T1D tho. 5 years ago I developed Diabetic Gasteroparesis, rather, Delayed Gastric Emptying and is the most painful thing a human can withstand. At least I think so. The first time I went into DGP, Andy was terrified T1D was claiming me. The pain and worry on his face still hurts. He changed. He is constantly researching Diabetes. He brings home food he hopes I can eat, he makes sure everything I can keep down is in the fridge, he takes me everywhere, he argues and protects me against doctors. When I want something, he lets me have it. He bought a Disney Production Cel of Malificent for me, he found my Pink Jeep, he found my perfect house, he loves me. I am quite hard headed, he knows this and has developed ways to get me to do what he wants, sit down. His official name is,,,,, Attila.
Finally, my daughter. She just turned 19. At 8 mos. preg, I was lectured on how selfish I am and I should abort this child. She was 100% going to be mentally and physically deformed. I told that, um, woman no, she feels fine and on her due date she arrived, perfect. 19 years later, she is 5'5", long blond hair, beautiful blue eyes like her Dad, and porcelain skin. She is able to take care of me when I am unable to do so. I constantly have my T1D in the back of my mind, kind of like breathing. I figure I don't fret over it, no one else is either, there is no reason to do this. I realized, at the end of her Senior year, she is living T1D in a different manner and since I am her Mother, she is terrified. To sum it up, she did not know what she would find when she woke up and when she would come home. Teenagers have very bad angst and I added to hers. What an amazing kid to never have let me know this fear. She did not wan to cause me stress. She is in University for Neuroscience and wants to find a University in Hungary that has this as a field of study.
I try to let them know this on a daily basis.
