CrumblingWall
Well-Known Member
- Messages
- 71
- Location
- London
- Type of diabetes
- Don't have diabetes
- Treatment type
- I do not have diabetes
I found this forum through Google. I want to share a story and see what people think. I will preface that all of this happened a year ago where an endocrinologist decided this is not diabetes.
November 2017, started feeling run-down. Two years before, during stressful period in life, I was not eating much and got ketone taste in my mouth, after eating carbs. I made a mistake of Dr Googling and it has shown diabetes. I went to do tests which were normal. I remember a reading of 6.5 mmol/l 2-3 hours after a meal at doctor's office. I was told all is good and start eating carbs. And I did ear carbs.
Fast forward November 2017. I got exactly same problem after two months of eating very carb heavy diet. I went to a hospital and they found 3+ glucose in my urine. I then went to GP and I had 3.9 mmol/l fasting BG with 4.9% HbA1c. I insisted on glucose tolerance test and went to do it while low carbing. My BG went to 13.2 mmol/l AND I started to pee bloody urine. Which was weird so A&E time it was. Kidney stone. The registered BG was lost in the hospital. I told my GP what I saw on the meter by the nurse and he reluctantly sent me to an endo.
Endo immediately started a workup on type 1 diabetes. Antibodies (3 of them) came back negative. He seemed to calm down. Ordered HbA1c, fructosamine. Normal. Fasting BG was normal but c-peptide was slightly low. He did not make any fuss about that. He repeated OGTT which I failed again on 14.2 mmol/l after 2 hours. The hospital thought I had DKA so they put me into bed for two days, monitoring BG with no insulin. I was told the variation was normal, that high OGTT was caused by low-carbing and to resume carbs slowly.
The endocrinologist was right. For the last year I was hovering around 5.2 mmol/l while on low carb diet. Why am I on it? Because my attempts to return to normal diet and see what pancreas can do resulted in a disaster where week after week I saw high readings in 10-12 mmol/l after meals and I was not happy with it. My BG always comes back down. But I started eating to the meter to this day.
My blood glucose varied between 5-6 mmol/l on this diet. I feel low when my CodeFree shown 4.6-4.8 mmol/l. My HbA1c increased to 5.0% while on low carb. I feel best at 5.2 mmol/l.
I observed that my blood glucose control worsened in the last couple of weeks where I am consistently above 6 mmol/l after meals, stay there longer and feel symptoms of hyper: pressing headache, tingling and anxiety, sleepiness.
Questions.
1) Does this show a worsened BG control?
2) If so, could it still be type 1 diabetes but very slow progression?
3) What do you make of failed OGTT a year ago? Twice.
4) Why did I have better HbA1c a year ago ona high carb diet but worse % on low carb diet?
Values that I remember from two years ago: 6.x mmol/l after carb heavy meal, 4.x something after meals. Perfectly normal.
Fast forward to now: 5.x mmol/l and no less all the time. Close to 6.x fasting and above 6.x close to 7.x postprandial on low carb meals.
Long, but I hope someone answers.
November 2017, started feeling run-down. Two years before, during stressful period in life, I was not eating much and got ketone taste in my mouth, after eating carbs. I made a mistake of Dr Googling and it has shown diabetes. I went to do tests which were normal. I remember a reading of 6.5 mmol/l 2-3 hours after a meal at doctor's office. I was told all is good and start eating carbs. And I did ear carbs.
Fast forward November 2017. I got exactly same problem after two months of eating very carb heavy diet. I went to a hospital and they found 3+ glucose in my urine. I then went to GP and I had 3.9 mmol/l fasting BG with 4.9% HbA1c. I insisted on glucose tolerance test and went to do it while low carbing. My BG went to 13.2 mmol/l AND I started to pee bloody urine. Which was weird so A&E time it was. Kidney stone. The registered BG was lost in the hospital. I told my GP what I saw on the meter by the nurse and he reluctantly sent me to an endo.
Endo immediately started a workup on type 1 diabetes. Antibodies (3 of them) came back negative. He seemed to calm down. Ordered HbA1c, fructosamine. Normal. Fasting BG was normal but c-peptide was slightly low. He did not make any fuss about that. He repeated OGTT which I failed again on 14.2 mmol/l after 2 hours. The hospital thought I had DKA so they put me into bed for two days, monitoring BG with no insulin. I was told the variation was normal, that high OGTT was caused by low-carbing and to resume carbs slowly.
The endocrinologist was right. For the last year I was hovering around 5.2 mmol/l while on low carb diet. Why am I on it? Because my attempts to return to normal diet and see what pancreas can do resulted in a disaster where week after week I saw high readings in 10-12 mmol/l after meals and I was not happy with it. My BG always comes back down. But I started eating to the meter to this day.
My blood glucose varied between 5-6 mmol/l on this diet. I feel low when my CodeFree shown 4.6-4.8 mmol/l. My HbA1c increased to 5.0% while on low carb. I feel best at 5.2 mmol/l.
I observed that my blood glucose control worsened in the last couple of weeks where I am consistently above 6 mmol/l after meals, stay there longer and feel symptoms of hyper: pressing headache, tingling and anxiety, sleepiness.
Questions.
1) Does this show a worsened BG control?
2) If so, could it still be type 1 diabetes but very slow progression?
3) What do you make of failed OGTT a year ago? Twice.
4) Why did I have better HbA1c a year ago ona high carb diet but worse % on low carb diet?
Values that I remember from two years ago: 6.x mmol/l after carb heavy meal, 4.x something after meals. Perfectly normal.
Fast forward to now: 5.x mmol/l and no less all the time. Close to 6.x fasting and above 6.x close to 7.x postprandial on low carb meals.
Long, but I hope someone answers.
