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Necrobiosis Lipoidica for 11 years”

C

chantal84

Newbie
Messages
2
Type of diabetes
Don't have diabetes
Treatment type
Insulin
Hoi ik ben chantal ben 41 jaar en heb al 11 jaar Necrobiosis Lipoidica
ik heb geen suikerziekte
woon in Nederland
ik heb alle zalfjes
camouflage ttherapieeen slechte werkte totaal niet
Kleine prikjes in de randen van de vlekken
iik heb grote plekken vlekken 10 cm op allebei de scheenbenen
ik heb puva werkte niet
heb nu spuiten isuline dat ook gebruik wordt bij mensen met ziekte van krohne crohne moet ik om de 2 weken zelf zetten heb over 2 weken weer een afspraak maar zie geen
verandering
Ik schaam me dood zomers haat ik terwijl ik zo van de zomer hou draag niks korts meer
en sluit me thuis vaak op het maakt me heel ongelukkig ben me ten einde raad kan er niemand erover praten tot ik dot forum zag dacht dat ik de enigste was in nederland
 
Hi @chantal84 & welcome to the forum :)

As we are a UK site we’ve added a translation of your post in English to the thread so that members can read it without having to translate. when you post can you translate to English please, If you need to use a translating tool we recommend asking google to translate for you.

Translation of post by moderators
===================

Hi, I'm Chantal, I'm 41 years old and have had Necrobiosis Lipoidica for 11 years. I don't have diabetes. I live in the Netherlands. I've tried all the ointments. Camouflage therapy, a bad one, didn't work at all. Small injections in the edges of the spots. I have large spots of spots, 10 cm across, on both my shins. I tried PUVA, which didn't work. I now have insulin injections, which is also used for people with Crohn's disease. I have to administer Crohn's myself every two weeks. I have another appointment in two weeks, but I don't see any change. I'm terribly ashamed of myself. I hate summer, even though I love summer so much. I often lock myself up at home. It makes me very unhappy. I'm at my wits' end. No one can talk about it. Until I saw this forum, I thought I was the only one in the Netherlands.
==========================
You say take insulin for it? Insulin is only usually used as a treatment for diabetes with daily injections, someone with Crohns disease wouldn’t treat it with insulin, are you sure it’s insulin you are using? It may be that the translation to English isn’t correct because your post also says “I have to administer Crohn's myself every two weeks” Crohns is a disease not a treatment.

A link below explaining what Necrobiosis Lipoidica is as I’m not sure we have any members with this condition. It appears to be a very rare condition

Necrobiosis lipodica​

Necrobiosis lipoidica, NLD, Necrobiosis lipoidica diabeticorum. Authoritative facts from DermNet New Zealand.
dermnetnz.org
dermnetnz.org
 
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