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need advice Type1 daughter.

emmysmum

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Diet only
I also have a 12 year old autistic daughter, who was diagnosed as T1 last year. I also have four other kids (I know, must be mad) who aren't on the spectrum. Having to cope with a child who has diabetes T1 alone, is a hard, but coping with a child who has T1 and autism is a nightmare as you probably know! Glad to know there are other parents out there who are in a similar situation.
 
Last edited by a moderator:
Hi, just wondered if anyone could help. I posted earlier about my daughter, who has ASD and was diagnosed with Type 1 in March last year. I'm just having real problems with my daughter's behaviour at the moment and it's making the control of her blood sugar levels almost impossible. I'm at my wits end really. We have an appointment at the diabetic clinic next week and I'm dreading it, and worried that we are going to get into some kind of trouble over her high blood sugar levels. Her levels have been well managed in the past, but over the last three months my daughter's hormone levels appear to have gone up considerably and we can't do anything with her at home. At school, it's a different matter altogether. Honestly, sometimes when I approach the school for support, it's like were talking about a different person. Her behaviour is totally different at school, compared to at home. We have been having issues at injection time, resulting with my daughter throwing the glucose meter across the room. I will need to take 4 different meters with me to the appointment as I've had to replace the meters that don't work properly - and mix up the dates and times of the blood sugar readings. She won't listen to me when I try to explain that she can't have as much chocolate, she just swears at me. I asked the school for support re: the glucose meter throwing incidents, and it seems to have done the trick(for the time being). We've also got a reward system, for her to try healthy food at home (although so far it's not working). I can't believe she actually eats school dinners, but at home she won't entertain anything different. I'm supposed to be meeting the dietician to discuss carb counting when I take her to the clinic. I'm just wondering how I'm going to do it (realistically).
 
Hi ,
There's no reason why your daughter can not have chocolate the trade off is an injection to cover it. Or simply no sweets/chocolate at all except as part of a meal so the insulin covers it then.
Your daughter can eat the same foods as everyone else as well. It just needs to be covered by insulin.
 
Possibly your daughter behaves well at school but frustrations build up - and are vented at home. The hormones won't help matters, so you are between a rock and a hard place.

If she has high functioning autism, things could be easier and her diabetes can be discussed in a calm way. If not, then I don't envy the hard work ahead of you.

I wouldn't worry about getting into trouble with the hospital, they will be used to hormonal kids. Hopefully they can offer some useful advice.

As CarbsRok says, there's no reason she can't have chocolate, but remember it's high fat so she could go hypo if it is eaten on its own and bolussed.

I'm sorry I can't offer any decent advice. Just stay calm - and breathe.
 
Hi

There is no real reason why your daughter needs to use Bolus Basal injections to deal with diabetes. Twice daily insulin is easier to comply with and as long as food is eaten as a snack mid morning and mid afternoon, and before bed, most kids and adults can get through life ok even with eating something like chocolate. My mum never forbid me to eat anything and wanted me to be able to have a nice life growing up. I sometimes had some chocolate if my bg had dropped a bit low and it seemed to work ok and I didnt feel restricted that I could never eat it.

As regards to bg testing....well unfortunately, this has become a necessary evil that we all do to keep ourselves well and if we could fast forward the years for your daughter, she would be able to look back and be glad that she tested and looked after herself.

Tell your daughter to keep herself well enough to be able to benefit from better technology which is not too many more years away. The artificial pancreas involving a pump and cgm is not too far
 
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