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<blockquote data-quote="Hellyb" data-source="post: 124285" data-attributes="member: 25471"><p>Hi, i'm new to this forum business but after reading a few posts, particulary yours, i felt the need to join. My daughter was diagnosed with type 1 diabetes 4 years ago following a brain virus. She was rushed to A&E where we didn't think she was going to make it and was then left with no mobility, speach or senses for a while, she had seizers and as a result was left with diabetes. She spent a long time in hospital wired up to drips and had many cannulas as her veins kept collapsing. She was a very poorly frightened 8 year old at the time. She developed a needle phobia due to the terrible time in hospital and I was told by a nurse if she refused her injection when we were home then I should sit on her and inject in her bottom. Not good times. We have had an amazing team of specialist diabetic nurses looking after us, one in particular, who introduced us to some amazing tools. </p><p></p><p>My daughter was using Novamix insulin so we could use a 'PEN MATE' which is a device that is fitted to your normal insulin pen but rather than having to put the needle into the skin yourself, the device does it for you and also shields the needle so it cannot be seen. This was a huge turning point for us and gave our daughter confidence and independence. </p><p></p><p>As she was so poorly she was running high ketones. We were given a BM monitor that you can also test your ketones on. The machine is an Optium Xceed which allows you to test blood glucose and ketones. You can detect ketones in the blood alot sooner than you can in the urine therefore allowing you to pick up on a problem sooner and deal with it before your child becomes really poorly with ketones. </p><p></p><p>My daughter had problems with insulin not suiting her and after a long and hard slog with the hospital they now have funding for pumps for children, my daughter being one of the first lucky ones to receive one. Our life has changed completely since being on the pump. </p><p></p><p>At the time of diagnosis I had a 18 month old who struggled with all the upset and anxiety that me and my husband went through. It took me a long time to come to terms with Diabetes, its a life changing experience that affects the whole family. With time it becomes second nature and you settle into it but it seems like a mindfield at first. Children are so brave, I think my daughter has accepted it better than I have, after all they have to, this is the way of life now for them and they just seem to get on with it. I have alot of admiration for all those children out there getting on with life. </p><p></p><p>We got involved with JDRF which is a children's charity dedicated to finding a cure. They do lots of different charity events to help raise money for research. I do believe that in our children's life there will be a cure. Hold in there. I will pray for you all and hope you get the same support we had and are still getting. As I said earlier we have an insulin pump now and our first month has gone really well, its an amazing piece of kit. Regards to all.</p></blockquote><p></p>
[QUOTE="Hellyb, post: 124285, member: 25471"] Hi, i'm new to this forum business but after reading a few posts, particulary yours, i felt the need to join. My daughter was diagnosed with type 1 diabetes 4 years ago following a brain virus. She was rushed to A&E where we didn't think she was going to make it and was then left with no mobility, speach or senses for a while, she had seizers and as a result was left with diabetes. She spent a long time in hospital wired up to drips and had many cannulas as her veins kept collapsing. She was a very poorly frightened 8 year old at the time. She developed a needle phobia due to the terrible time in hospital and I was told by a nurse if she refused her injection when we were home then I should sit on her and inject in her bottom. Not good times. We have had an amazing team of specialist diabetic nurses looking after us, one in particular, who introduced us to some amazing tools. My daughter was using Novamix insulin so we could use a 'PEN MATE' which is a device that is fitted to your normal insulin pen but rather than having to put the needle into the skin yourself, the device does it for you and also shields the needle so it cannot be seen. This was a huge turning point for us and gave our daughter confidence and independence. As she was so poorly she was running high ketones. We were given a BM monitor that you can also test your ketones on. The machine is an Optium Xceed which allows you to test blood glucose and ketones. You can detect ketones in the blood alot sooner than you can in the urine therefore allowing you to pick up on a problem sooner and deal with it before your child becomes really poorly with ketones. My daughter had problems with insulin not suiting her and after a long and hard slog with the hospital they now have funding for pumps for children, my daughter being one of the first lucky ones to receive one. Our life has changed completely since being on the pump. At the time of diagnosis I had a 18 month old who struggled with all the upset and anxiety that me and my husband went through. It took me a long time to come to terms with Diabetes, its a life changing experience that affects the whole family. With time it becomes second nature and you settle into it but it seems like a mindfield at first. Children are so brave, I think my daughter has accepted it better than I have, after all they have to, this is the way of life now for them and they just seem to get on with it. I have alot of admiration for all those children out there getting on with life. We got involved with JDRF which is a children's charity dedicated to finding a cure. They do lots of different charity events to help raise money for research. I do believe that in our children's life there will be a cure. Hold in there. I will pray for you all and hope you get the same support we had and are still getting. As I said earlier we have an insulin pump now and our first month has gone really well, its an amazing piece of kit. Regards to all. [/QUOTE]
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