New here needing advice for a 9year old

Hello and welcome, @momof3x

It is not possible for any of our members to diagnose. I am sure you must be quite worried about your young daughter though. Best to seek advice from GP. Or maybe test ketones and if concerned check with out of hours health service? Any diagnosis, as I am sure you aware from recent experience with your other daughter, is made on more than just the finger prick blood test.

My T1 mother (who almost died of DKA before she was diagnosed in her early twenties) took me to the doctor for tests when I woke in the night asking for water several nights in a row. So I got diagnosed unusually early. These were the days when the only form of blood sugar testing was a chemistry experiment to tell you how much sugar was in your urine. (A positive result indicated a bg over 10mmol/L)

As an adult whenever I worried that my children were showing signs of diabetes I used urine testing strips. I figured that if they were diabetic they would start passing sugar into their urine and that would be a sign I should take them to the GP. (I also figured I'd have a mutiny if I tested their blood sugars too often. )

I can imagine you are very worried but even if we were allowed to diagnose (which we aren't) I don't think you have enough data to make any predictions yet.
says you need a random bg over 11.1, two hba1cs over 48mmol/l or a fasting bg of over 7.0 mmol/L . And remember that non diabetics can get occasional higher blood sugars and also blood testing machines aren't always accurate.

If it's any help, my teenage son once had a slightly higher than normal bg at the GP and they did a glucose tolerance test, which he passed. Now he's 33 and still not diabetic, so though I reckon he might get T2 one day (3 T2 grandparents) the risk of childhood T1 is well and truly over.

You know your child so I think you are right to see the GP if you are worried, though.

Good luck. I really hope she doesn't have diabetes but at least if she does she'll be diagnosed very early and have family members around her who already understand how to treat the disease.

I have something of interest you might want to listen to @momof3x . I attended an online conference on T1 screening. Although this is something the US are doing, hopefully other countries will at some point start something simular, it's a screening program for T1 - children as well as adults with risk factors for T1 . These risks factors are: A family member with T1 - sibling or parent; another autoimmune disorder such as coeliac , hashimoto's , graves, Sjogrens, Crohn's to name a few autoimmune disorders. Any one of these risk factors means you can be screened for T1 (In the US only) The screening tests for any of the 4 known autoantibodies associated with T1 (There are actually 5, but they test for the most common ones) If 2 or more of these autoantibodies are found then, according to the panel, you will develop T1 diabetes. If only 1 type of autoantibody is found, then you may or may not go onto develop T1 , but you are always at risk of developing acquiring a second autoantibody, which means you will go onto develop T1. There is a discussion about the uncertainty that follows when only 1 type of autoantibody is found. Importantly this is before blood sugars issues are present, so none diabetics with risk factors.

Here is the link to the conference via YouTube. It is very informative.
I'm going to transcribe it at some point and post. I'm sure you will find it very informative.


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