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kalnic

Newbie
Messages
4
Type of diabetes
Type 3c
Treatment type
Insulin
Hi.

2 months ago the endocrinologist put a diagnosis of 'type 3c' on my hospital file when going over my history of pancreatitis while pregnant 2 years ago. I'm currently pregnant again and she has said that this is what I have as my levels were far too high to be 'gestational diabetes'. I'd had ongoing issues with digesting foods since the pancreatitis and it's just gotten worse.

She's prescribed creon to take with 3 main meals a day and it helped so much! I was able to eat without being in agony. Which was incredible. Until now.. It seems my pancreas doesn't want to play fair or I'm used to the current dosage of creon ( 25,000? 3 times a day ). Apparently it's not safe to increase until after baby is born which is another 6 weeks away.

I'm also on levemir and humalog but still having trouble keeping my bsl in the strict range or under 5 fasting and under 6.7 2 hour post meals.

Not sure I really need advice, it was just nice to find other people who have this seemingly rare form of diabetes!! I actually felt excited!!

Although, they've now put on my file 'type 1' as here in Australia, it seems no one knows what we're on about.

So hello!!!
 
Hi @kalnic ,

Can't help with 3C, but welcome to the forums.
 
Thank you :) I'm hoping I can learn something from all of the posts on here. I'm a bit overwhelmed with it all.
 
kalnic said:
Thank you :) I'm hoping I can learn something from all of the posts on here. I'm a bit overwhelmed with it all.
Click to expand...

It takes time, there's a lot of information to absorb. This is a quiet period, I'm sure you'll get some other T3's along later to help out.
 
Is it normal for bsl to be all over the place?

I feel like I'm having a hypo and I test and it's 7-8. The feeling gets worse and I start feeling really horrible and I test again only 5 minutes later and it's dropped to under 3!!

I've asked the endo and she's just kept increasing my basal insulin to reduce the morning levels as they're still above 5 and being pregnant, we're supposed to be under 5 fasting and under 6.7 2 hours after meals. I have a good 3-4 hypos a day of under 3. I feel like I'm on a roller coaster ride.

My pancreas is being temperamental too. Pain comes and goes.. The sick feeling increases every time I eat. Maxalon is no longer helping with the constant nausea and I now have the oil leakage starting up again. It seems the team who is supposed to be helping me, isn't really listening so I'll have to find someone else.

I guess you all have the same issues with the pain. They've suggested I only take panadol of desperate.
 
I'm surprised you've been told to keep under 5, usually between 5 & 6 fasting and keep below 8 after a meal.
False hypos are normal with 3c, as are sudden hypers. It is possible you are spiking up then dropping back to normal giving false hypo, body then thinks something is wrong then drops to a hypo.
Are you seeing a panc specialist?
 
Is an endocrinologist one of those? When I told her ( only about 2 months ago ) that I was still having so many problems with food, ( 2014 I was in ICU with pancreatitis and no follow up ) she suggested creon. I tell you what, the first few days of taking it and I was in heaven!! I could eat without crippling pain and having to shower just to ease it a little for a short time to get through the day. I was only eating tiny amounts once a day if I could force myself to do even that.

Apparently my scans I had done back then showed it was damaged. But no one bothered to let me know it would continue to cause issues so I was dealing with it alone. She's still not to crash hot as she tends to just let general doctors deal with it now and they're hopeless.

Pregnancy levels are really strict. I see them in about 2 weeks and no doubt it'll be the same " you're doing really well, keep it up"

I assumed I was spiking so I test often. I seem to hover around the 5-6 mark most of the day except mornings when it's quite high ( around 10ish after breakfast ). I can't eat grains, eggs, any packaged foods really. No potato or starchy gassy veg. So my diet is quite restricted.. Not sure I'm keen on mixing it up to see if it helps. It might cause more pain than it's worth! Hah!
 
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