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gucci yum yum

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Hi, My name is Denise. I was diagnosed type 2 five months ago. Four years ago I had severe acute pancreatitis which left me with about 80-90% sterile necrotis pancreas. I was very lucky it was sterile and not infected because the outcome from that is very grim. The consultant could not find any reason for my pancreatitis, it was not alcohol, gall bladder, immune, or cancer. It was idiopathic i.e. they could not find any reason for it. I was told that I was not diabetic but would eventually become so.

It came as no shock when I was diagnosed in May this year as I was expecting it and was a kind of relief that I could now get treatment and move on. I have been put on Metformin SR 500mg, one a day. I have just had my first blood tests taken since and await the results. I also take Enalaprin for my stomach (a had a duodenal ulcer and severe raised erosive gastritis following the pancreatitis), tablets for high blood pressure, statins, and a anti depressent which was prescribed because the doctor said my body was depressed.

I get severe bouts of tiredness, really bad. I very often feel like a rag doll and some days have to stay in bed. They say this is nothing to do with either case! I also have a sickly stomach, discomfort when I eat a normal sized meal and occational pain under my ribs.

I would like to hear from anyone who has developed diabetes through pancreatitis. p.s. gucci yum yum is my dogs name, gucci for short.
 
Denise
I'm surprised that your doctor is treating you, with a non-functioning pancreas, as a Type 2 diabetic and I'm not surprised you are feeling bad. The destruction of the pancreas, would produce a T1 type of diabetes, which needs insulin ALWAYS.
I would go back to your doctor and ask him why he chose Metformin for you. Then I'd ask to be sent to the specialist. In the meantime, I would get a meter, keep a frequent watch on my blood glucose readings and also get some ketostix from the pharmacy and check for ketones in urine. Presence of a lot of ketones with high blood glucose, is a medical emergency.
 
Thanks for Reply

Thanks for your reply. Apparently you can manage with 90% of a pancreas without becoming diabetic, so the 10% I have is producing a little but after four years now not enough. My worry is that there are other enzemes produced by the pancreas, glucagon is one. This is sent to the liver to release glucose when we need it. As my levels are only just there they say they are ok. No person seems to look at the body as a whole. With a lot of my levels at the bottom end of the scale but just within it all my boxes are ticked! I am seeing a consultant privately, who works at my local hospital, as well as the practice nurse at my G.P.'s but am not sure where I could get the full spectrum of tests needed to cover the whole body. My G.P. is not much good I hDenisead to ask him what I could do to keep an eye on my glucose levels and he just referred me to his practice nurse. The same as when I wanted to talk about coming off HRT, he said go and talk to the nurse!
 
Your Gp is no good for you.

Get yourself referred to an Endocrinologist. They specialise in the whole body and are available to you on the NHS.
 
Have seen my consultant this week and asked about other enzymes of the pancreas. He said if I was not producing glucagon I would be loosing weight, which I am not. If I was not producing enough digestive enzymes I would have pale smelly floating stools (sorry, not very nice) but I do not. He therefore seems to think everything ok. I am managing to keep blood sugar under control with metformin sr 500g, one a day and cutting out sugars, biscuits and pastries. The fact that I am not allowed to drink because of my pancreas and cutting out the enjoyable parts of
eating I now eat to live and do not live to eat. However I do have a treat now and then, but am very happy to be alive and controlling my diabetes!
 
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