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Newbie and living with T1

leeingrove

Member
Messages
7
Hi all!
I live with my uncle who has T1 was diagnosed at 65 and is now 84. For 15 years he was doing well and then for some reason the last 4 years have been some what difficult, to start for almost 2 years he would have at least 5 night hypos and 2 day hypos, I read books etc, but nothing much helped, eventually I convinced him to see the doctor, only to be told can not find anything wrong, suggested consulting the doctor at next diabetic clinic, this he did 3 times and still it carried on, until it got so bad that I was calling 999 at least 3 times a week, saw many paramedics some sympathetic some a little condescending when after about 3 months a paramedic who attended my uncle and I spoke in depth about the situation understood what I and my uncle was going through, as such rather than going through the usual rigmarole, wrote out a full report detailing all 999 calls for past month and when going to the clinic next show all ambulance report call outs.

Would you know it, the doctor he usually see's has moved on and the new one asked my uncle the most basic of question, do your hypo's occur more at night when you are sleeping? Yes... For 2 years was given the wrong dosage for night time!!!

Touch wood the last 2 years has not had a serious hypo, in fact has only had 2 and they were minor.

Do doctors know what they are doing or is it a case of trial and error???

Must say though I have become quite an expert in bringing a person out of a hypo.

[mod edit: joke about treatment could be misinterpreted]
 
Hi

Is your uncle using twice daily insulin or bolus/basal (multiple injections) to manage his diabetes?

Im shocked that your uncle's diabetes team didn't help him to sort out the reasons for the hypos until just recently.

[mod edit: reference to joke about treatment]

Hypostop is much better.............. works through the buccal lining of the mouth or gums.
 
[mod edit: reference to joke about treatment]
 
leeingrove,

Sounds like a bit of an odd regime... have you spoken to his care team about the hypo's and illness?
 
Hi Lee

Twice daily insulin is ok as long as it's at the correct strength. Often 30/70 mixes can cause people a lot of hypos so they need 20/80 or 25/75 but for some it's not strong enough and they need something like 40/60 or 50/50. To get the best from them, eating specific amount of carbohydrate at set times during the day usually keeps control ok but bg testing 4-6 times a day will also act as a good guide. In some ways it's better than bolus/basal as it's not so many injections and people don't have to adjust insulin for the carb, instead it's adjust carb for the insulin lol.

Do look at Hypostop as it has been many diabetics saviour. Also lucozade doesn't make too much of a mess if given in a kid's drinking cup with a screw on lid and mouthpiece.
 
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