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Newly diagnosed and Neuropathy

Ian in Cheltenham

Active Member
Messages
25
Location
Gloucestershire
I was given the news by my GP on Friday that I have diabetes - I presume type 2. My fasting test result was 10. It's rather poleaxed me and I'm beating myself up for not having lost weight over recent years as I had intended. I have my first appointment with the Practice Nurse on Friday prior to my attending DESMOND.

I have a question on Neuropathy. Over the past few weeks I have had a lot of tingling in my back and legs and on the outside of my arms incuding my little fingers. I'd assumed the tingling in my legs was due to a pinched nerve but having read about neuropathy I'm not so sure! Its keeping me awake at nights, my legs are twitching and it takes me a while to get to sleep. Fortunately,by the morning it seems to have gone. My question is should I draw this to the attention of my Doctor now or wait until I see the nurse on Friday?

Ian
 
Hi Ian and welcome to the forum :) If you already have an appointment with your DN on Friday I suggest you ask her about your pins and needles unless you are able to get an appointment with your GP before this when it might be a good idea to talk to him since it is bad enough to make you lose sleep.

Since you are newly diagnosed, here is some information that will help you to get started on gaining good control of your diabetes. It is, by the way, not your fault that you have diabetes even if you are overweight as most overweight people do not get diabetes.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi Daisy1. Thank you for your prompt response. It's all very new to me at the moment - I seem to be thinking of Diabetes all the time and it's really dragging me down. I really am in a bad place mentally over it but I see others on the forum have had a similar reaction which is, sort of, reassuring.

In anticipation of being told to modify my diet I have done so already, cutting back on the excessive carbohydrates I was consuming and upping my non starchy veg and having lean meat or fish. I seem to have lost some weight which is the one ray of light at the moment.

Ian
 
welcome,

your reaction is totally normal and things DO get better as it gets more familiar.
You don't say what medication (if any) you are on? Are you treated by diet alone?
 
Thank you Snodger - I hope so!

I think the intention is that I should initially try and control my sugar levels by diet and exercise alone - I'll know more on Friday. I've got a call into the nurse for (hopefully) some reassurance on the tingling I've been getting in my legs, and for some reason, little fingers.

I really don't want this!

Ian
 
I think I would have to say yes.
I'd noticed twitching, more in my fingers and wrists.
Originally my symptoms pointed to ME, as my BG seems normal, but then the last fasting level was 14.
I was put on metformin, and to be honest, that and a total diet change to low GL, all the symptoms went.
 
Neuopathy is a sod :evil:

Unless you are young, healthy and fit or a lizard or a worm once the damage is there then it will stay there , the good news is that you can reduce the symptoms and some pain by diet and exercise .

The US health dept site has got some good info .
http://diabetes.niddk.nih.gov/dm/pubs/neuropathies/

Nerve damage can also happen for many other reasons such as spine damage or if the nerves get damage or severed during surgery or an accident .
 
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