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Type 1 Newly diagnosed being offered DAFNE & pumps??

jones_48

Well-Known Member
Messages
51
Location
England
Type of diabetes
Type 1
Treatment type
Pump
Hi,

I am somewhat annoyed because a lady I work with has been put on to a DAFNE course and has also been offered the pump. She was only diagnosed in September last year yet is being offered these already - I have been diabetic over 11 years now and have never had such opportunities. I know 11 years isn't a lot compared to some people, but I really can't get my bloods under control - for years my HbA1C has been 8%+, and more recently 7.4% but that was due to me hypoing daily with readings of 2.0.

I realise it must be hard for those newly diagnosed but I don't think it is fair that their needs are put before that of people that have had diabetes long-term. Has anyone else noticed that this is happening??
 
There's been a few members who have moved over to pump therapy having only been diagnosed a short time, personally I don't have any problems with it as the clinicians must have thought there was a need for this decision, but do fully appreciate your point if you've been asking to go on a pump yourself.
 
If I was you I'd make a nuisance of myself to my diabetic clinic, as much as possible. They'll soon solve the problem if you do that.
 
After having a look through some of your previous postings it would appear that you haven't really made constant, continuous steps to control your diabetes.

It may well be that the lady you're referring to has... So why should she come after you?

I'm not saying that this is the case. However, I note that one posting was regards to mussing injections, carbs and cal book etc.

I know my hospital will not recommend a pump to anybody that has high levels or has had DKA.

NICE guidines are strict for getting a pump so the other lady you refer to has to have met the guidelines.
 
You are borderline eligible for a pump, and in theory it goes on clinical need. But you should make your case, particularly point out that you can't maintain below 8% without serious hypos. Unfortunately getting a pump is something of a reward for failure. If a patient is reasonably well controlled the doctors let well enough alone and allocate the pumps to those in greater need. Or to people under 18 who have priority .
 
I was diagnosed in July 2013, and started on a pump 18 months later.

Why?

I met the clinical criteria and made a persuasive case to my consultant who is pro pump. I also put the work in to demonstrate that i both needed and would use a pump effectively based on research of how to use a pump, pitfalls, positives etc. Why should I necessarily be put to the back of the queue simply on the basis of time since diagnosis?

If you want a pump make the case for it with your consultant, proactively.
 

In all fairness my previous posts on here were 2 years ago, and I now act a lot differently towards trying to control it. It's hard enough to get enough test strips nevermind a pump so it's just got to me that people get the opportunity after 5 months.

From what she tells me she doesn't try; she went 3 days without injecting or testing because she lost her meter. And afterwards her blood was 13- if that was me I'm not sure I would've survived, or I would have at least got myself a new meter!
 
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