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Message: <blockquote data-quote="Missha" data-source="post: 2356627" data-attributes="member: 536603">Hello everybody and please help as I am getting really hopeless here <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown    :(" loading="lazy" data-shortname=":(" />I was diagnosed with reactive hyperinsulinism in the beginning of December and since the disease is pretty unknown in my country I found all the info here so thank you for all your experiences and stories. I was struggling for so many years and the symptoms was getting worse and worse, the time between meals when I was feeling ok (ok at that time, in reality not really ok) was getting shorter and shorter. Finally, I found a diabetologist who has heard about RH and sent me to 3 hours OGTT. The results were:blood sugar levels: 4,9 (fasting) 5,2 (60 minutes) 4,7 (120 minutes) 5,7 (180 minutes) not sure if the last one is correct, its pretty high for me even after meal!insulin levels: 6,22 (fasting) 63,38 (60 minutes) 46,77 (120 minutes) 44,02 (180 minutes)c-peptid: 0,49 (fasting) 2,28 (60 minutes) 2,07 (120 minutes) 2,13 (180 minutes)HbA1c: 33 mmolAfter those I was diagnosed with reactive hyperinsulinism which leads to RH because of the insulin levels. The true is, I wasn't even feeling hypo after the test, which is weird, as I am having first hypo feelings around 10 am, most of the times.I changed my diet immediately, low carb or keto, I am trying to keep the carbs around 50,60 a day. I was feeling pretty bad for about 14 days, almost like non stop hypo but then it changed and I felt like my life changed completely. I wasn't feeling tired after every meal, maybe two days I didn't even have hypo before lunch which was for the first time lets say in five years. I was soo happy! But then, after another week or two it turned back to "normal". I wake up, have a tea and if I don't have a breakfast in an hour I go hypo around 10 am. At 11:30 the hypo starts slowly again, have to eat lunch not later than at 12. I feel like afternoons are still better than there were before low carb but that may be because I have really big well-rounded snack (big meal lets say) between lunch and dinner which I didn't eat before going low carb.I also started measuring my blood sugar when going low carb and that's the weirdest thing! It makes me feel so hopeless and angry. When I'm feeling hypo (around midday or even in the morning if I don't eat my breakfast in an hour or max two hours after waking up), my blood sugar is usually above 5! Few days ago I wasn't able to eat my lunch at 12 and I was eating around 12:40, my body was already shaking like crazy. I was not feeling that bad since going low carb. Blood sugar? 4.6 I was like what??? That's not possible!So here I am, asking for an advice. To be honest after those measuring I am not even sure if I was ever really hypo. After going low carb I had a piece of lasagna with soy meat and I was 3.5 after hour and 30 minutes. But I was feeling like the hypo was just about to start so I think that maybe it was just incorrect measuring. I didn't try any carb food after as it scared me a bit, I am crazy scared about hypos since I almost passed out once, worst feeling ever, don't recommend<img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile    :)" loading="lazy" data-shortname=":)" />I read about the hypo hell periods here, that's what I went through too, I can't believe how many years I have lived like that. I finally saw a light at the end of the tunnel but now I am feeling like it's moving away <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown    :(" loading="lazy" data-shortname=":(" />And finally the questions! DO YOU THINK I REALLY HAVE RH? DO YOU EXPERIENCE HYPO SYMPTOMS EVEN THOUGH YOU ARE NOT REALLY HYPO?Thank you for all your advices and experiences!</blockquote>

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