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<blockquote data-quote="nancy57" data-source="post: 532149" data-attributes="member: 97098"><p>Hi Jayne,</p><p></p><p>My heart goes out to you and your family. I can't believe how much you are having to cope with on top of diagnosis. You sound as if you are doing incredibly well under really difficult circumstances.</p><p></p><p>My son, 4, diagnosed with T1 on the 31st Jan and I feel that we have just got to the stage where we are able relax with this as part of our lives. I thought it might help if I shared some of my experiences, as sdo many things you are going through sound familar.</p><p></p><p>When newly diagnosed, my son was also constantly hungry. Being on a basal/bolus regime meant that we could really feif him as much as possible during mealtimes but this seemed to make no difference, he was always hungry. He snacked on cheese strings, home made turkey burgers and meatballs, chicken legs, omelettes, jelly and the odd carrot stick. </p><p></p><p>Also his levels were in the teens for over six weeks, even though we were told that they should be within the normal range within 10 days. Apparently, regardless of constant tweaking in terms of his ratios, we were told it takes as long as it takes, and had nothing to with me miscalculating his carbs or not injecting correctly. Something I was constantly worried about. Hypos were something we didn't have to worry about for a long time, but now if I think my son's levels may be low. I check his blood sugars and a box of raisins or some apple juice does the trick. We have been told that as children are always with adults its very unlikely that they will have a severe or dangerously low hypo as someone always spots the signs and corrects before it gets to this stage.</p><p></p><p>With regard to school, your DSN will go into the school and help train staff. It may just take a while to get everything in place. My son moved from school dinners to packed lunches to make the carb counting easier, and was given his nova rapid once lunch was completed in order to ensure the insulin dosage matched what he ate. The school called me whenever they needed for advice and I was lucky that my work were very flexible.</p><p></p><p>I am sorry I do not know anything about CAHMS, but was wondering if your DSN can help you move up the waiting list considering how the diabetes is affecting your life.</p><p></p><p>My son has been on a pump for the last four weeks, which has transformed our lives once again. It has been another steep learning curve but definitely a move in the right direction as we no longer inject and normal snacking is now the norm. I hope this is an option available to you.</p><p></p><p>I hope this helps, it does get easier eventually, you will get there.</p></blockquote><p></p>
[QUOTE="nancy57, post: 532149, member: 97098"] Hi Jayne, My heart goes out to you and your family. I can't believe how much you are having to cope with on top of diagnosis. You sound as if you are doing incredibly well under really difficult circumstances. My son, 4, diagnosed with T1 on the 31st Jan and I feel that we have just got to the stage where we are able relax with this as part of our lives. I thought it might help if I shared some of my experiences, as sdo many things you are going through sound familar. When newly diagnosed, my son was also constantly hungry. Being on a basal/bolus regime meant that we could really feif him as much as possible during mealtimes but this seemed to make no difference, he was always hungry. He snacked on cheese strings, home made turkey burgers and meatballs, chicken legs, omelettes, jelly and the odd carrot stick. Also his levels were in the teens for over six weeks, even though we were told that they should be within the normal range within 10 days. Apparently, regardless of constant tweaking in terms of his ratios, we were told it takes as long as it takes, and had nothing to with me miscalculating his carbs or not injecting correctly. Something I was constantly worried about. Hypos were something we didn't have to worry about for a long time, but now if I think my son's levels may be low. I check his blood sugars and a box of raisins or some apple juice does the trick. We have been told that as children are always with adults its very unlikely that they will have a severe or dangerously low hypo as someone always spots the signs and corrects before it gets to this stage. With regard to school, your DSN will go into the school and help train staff. It may just take a while to get everything in place. My son moved from school dinners to packed lunches to make the carb counting easier, and was given his nova rapid once lunch was completed in order to ensure the insulin dosage matched what he ate. The school called me whenever they needed for advice and I was lucky that my work were very flexible. I am sorry I do not know anything about CAHMS, but was wondering if your DSN can help you move up the waiting list considering how the diabetes is affecting your life. My son has been on a pump for the last four weeks, which has transformed our lives once again. It has been another steep learning curve but definitely a move in the right direction as we no longer inject and normal snacking is now the norm. I hope this is an option available to you. I hope this helps, it does get easier eventually, you will get there. [/QUOTE]
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