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Diabetes Discussion
Type 1.5/LADA Diabetes
Newly diagnosed - some questions. Thanks.
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<blockquote data-quote="Seacrow" data-source="post: 2202455" data-attributes="member: 420515"><p>Wow. You're really getting a good look first hand at the diabetes roller coaster, as I like to think of it. OK, your questions, please bear in mind all of this is personal opinion.</p><p>Q1</p><p>A positive antibody test is usually taken as a definitive test for auto-immune diabetes. In theory, extremely rarely, you could test positive because of another auto-immune reaction happening at the same time as your blood glucose is rising, in practice positive GAD=diabetes. Will your insulin production be partially or fully impaired? Nobody knows. I'm 17 years in, doc accidentally ordered a c-peptide test last year, to my shock, I'm still producing insulin. Not enough, but there you go.</p><p>Q2</p><p>The NHS does not, as a rule do an insulin production test, I don't even know if it's possible. What they can do is a c-peptide test. One molecule of c-peptide is produced for every molecule of insulin your body produces, and c-peptide is a little more stable than insulin, so easier to measure. I've found diabetic nurses don't want to order it, but if a doctor sees you're interested and involved in your diabetes, they probably will (my experience, others may be different).</p><p>Q3+Q4</p><p>A type one who isn't on insulin is really going to upset some NHS staff. My guess at possible reactions vary from "If you won't take insulin I can't treat you" to "As long as you're extensively testing your bg and stay in contact that's fine for now". Hope for an understanding and sympathetic doctor and nurse. You will need records to show that you are in normal range for most of the time. As far as going hypo, the doctor may try to argue that you need to eat more carbs for your insulin (it's a bad idea, but some docs push it 'to gain stability' while on insulin). The doc may also say you need to take insulin now to 'cushion' your pancreas against the auto-immune reaction, I don't know if there's any evidence for this working.</p><p></p><p>If the nurse/doc only had your bg levels, I'm fairly sure they wouldn't be talking insulin. It's the antibody test that has changed them onto the 'type one treatment track'.</p><p>Q5</p><p>Thank you thank you thank you. I've just done this, a very nasty puke-a-thon resulting in a no food 48 hrs, and was desperately trying to figure out why my insulin needs had gone down to 30%. Running away right now to try and find this study.</p><p></p><p>Sorry it's long, I tried to break it up some.</p></blockquote><p></p>
[QUOTE="Seacrow, post: 2202455, member: 420515"] Wow. You're really getting a good look first hand at the diabetes roller coaster, as I like to think of it. OK, your questions, please bear in mind all of this is personal opinion. Q1 A positive antibody test is usually taken as a definitive test for auto-immune diabetes. In theory, extremely rarely, you could test positive because of another auto-immune reaction happening at the same time as your blood glucose is rising, in practice positive GAD=diabetes. Will your insulin production be partially or fully impaired? Nobody knows. I'm 17 years in, doc accidentally ordered a c-peptide test last year, to my shock, I'm still producing insulin. Not enough, but there you go. Q2 The NHS does not, as a rule do an insulin production test, I don't even know if it's possible. What they can do is a c-peptide test. One molecule of c-peptide is produced for every molecule of insulin your body produces, and c-peptide is a little more stable than insulin, so easier to measure. I've found diabetic nurses don't want to order it, but if a doctor sees you're interested and involved in your diabetes, they probably will (my experience, others may be different). Q3+Q4 A type one who isn't on insulin is really going to upset some NHS staff. My guess at possible reactions vary from "If you won't take insulin I can't treat you" to "As long as you're extensively testing your bg and stay in contact that's fine for now". Hope for an understanding and sympathetic doctor and nurse. You will need records to show that you are in normal range for most of the time. As far as going hypo, the doctor may try to argue that you need to eat more carbs for your insulin (it's a bad idea, but some docs push it 'to gain stability' while on insulin). The doc may also say you need to take insulin now to 'cushion' your pancreas against the auto-immune reaction, I don't know if there's any evidence for this working. If the nurse/doc only had your bg levels, I'm fairly sure they wouldn't be talking insulin. It's the antibody test that has changed them onto the 'type one treatment track'. Q5 Thank you thank you thank you. I've just done this, a very nasty puke-a-thon resulting in a no food 48 hrs, and was desperately trying to figure out why my insulin needs had gone down to 30%. Running away right now to try and find this study. Sorry it's long, I tried to break it up some. [/QUOTE]
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Type 1.5/LADA Diabetes
Newly diagnosed - some questions. Thanks.
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