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Newly diagnosed Type 1

snapper84

Member
Messages
16
Hi All,

I am glad to have found this forum and I have found some of the information very helpful. I have recently been diagnosed with Type 1 however it is all very new to me and it just seems to be shed loads of information which I am struggling to process it all. I started with symptoms about 3 weeks ago night urnination, thirst, tiredness and the doctor sent me for some blood tests last Wednesday. I had them and received a phone call on Thursday saying I had high blood sugar and to make an appointment ASAP which I then did on Friday only to be told i have Ketones in my urine and I had to be admitted to hospital.

Anyway after spending 12 hours in hospital I came out with a lantus long lasting insluin injection i have to take and told to report back today for another appointment. The DSN told me that I have type 1 and gave me a NovoRapid to take before meals.

I am 27 years old male and have no family history of Type 1 Diabetes which makes it all the more confusing. I get the impression that they are saying I am type 1 because of my age, I am not overweight and fairly healthy, but i wouldn't know how to differentiate between the two so i am hoping someone could help me understand what makes them certain it is type 1?

There are also other questions I have like i don't want it to control my life and be afraid of it, or change my life drastically. I know initially i will have to make changes and learn to manage it but i am hoping that once i have undergone the initial process of this my life can be as close to normal as it was previously. I used to go away for 5 days with a group of mates for a poker/drinking holiday however guess this will have to change or now be done in moderation?

Sorry if i seem ignorant i am just trying to grasp and get some advice, and also express myself because i guess i find this hard to do to people. I am back for another appointment on Thursday but it is all very scary and i just really need to know what to expect within the next few weeks and months.

Thanks for listening
 
Hi Snapper and welcome to the forum Diagnosis is a shock and I know that I didn't believe it at first. But you gradually come to accept it and things get easier. You did a great thing finding this forum which will help you to gradually learn all you need to know about looking after yourself. Ask as many questions as you like here as there is always someone who will have an answer for you.

To help you to learn the basics, here is some information written for new members which should be of some help to you.

 
Hi Snapper and welcome!

Like you I had no family history of diabetes so being diagnosed with type 1 was a bolt out of the blue!

I have had diabetes for 30 years now and lead a normal life as much as anyone else so there are no reasons why you shouldn't, yes we have to be careful and remember to inject our insulin and test our blood glucose but these things do become second nature once who have had it for a while, it's all very daunting at first but believe me it will get easier!

Your 4th paragraph gives me hope you will adapt to diabetes well.....''everything in moderation'' is a term we often use on here and is a good approach when it comes to food and drink, I don't personally have a sweet tooth so rarely eat cakes or any other sweet things but everything else I eat in moderation.....so don't give up on those poker holidays just yet! :wink:

Best wishes and hope all goes well.
 
Thank you for all your help and words of advice.

A quick question is now I have started regulating my blood sugar with Novorapid before meals and the Background Lantus i have noticed i have started to become quite tired. My levels today have been between 5.5 and 10, is this normal due to the regulating of your BSG wheras previously it has been quite high 15+?

Thank
Steven
 
Oh sorry one more thing, I have also noticed that my vision is slightly off since starting the insulin, previously I could focus perfect short and close, but now I have difficulty focusing on things close to me.

THanks
 


Steve, for someone newly diagnosed those levels are excellent!

The 10 is slightly high but hopefully once you adapt to the insulin and work out which foods spike your bg then you should be able to reduce this figure.

The tiredness is quite normal and probably due to the upheaval you have experienced over the last weeks, I was burnt-out when I came home from hospital and took me weeks to get over the shock of having diabetes......not to mention the sleepless nights!

Your vision mentioned in the your other post could just be them getting use to normal blood glucose levels again after being high for some time, any concerns then I suggest you speak with your gp or diabetes team.
 
Yeah it spiked last night at around 15.7 before I went to sleep (I say sleep... lying with eyes shut thinking), but currently I don't have anything to bring it back down, but this morning the fasting was 8.9. It also dropped to about 4.4 today after I had my lunch, not sure if I ate too little or too much insulin, (4 units of novorapid) and I had a couple of sandwiches and biscuits.

What levels should I be aiming for in time, and when should I be wary that it is too low. It is the first time I have took my BG and it has been that low 4.4 so I wasn't sure what to do about it.

Thanks
 
Hi Snapper,

Whilst reading your post I kept nodding my head in agreement. I was diagnosed on Monday 19th Dec and currently my BG levels vary from 4.0 - 10.00. I'm currently on 10 units of Novorapidpen in the morning and 4 in the evening, I plan to reduce my insulin dose further as I keep getting low BG levels during the day and later on the evening. However, like yourself, I don't understand why I'm getting such low readings, too much insulin, not enough, too much exercise, not enough food??!! I've taken BG level readings today after my midday meal and it's 4.8?? Cant wait to see my GP on Thursday

Anyway, merry christmas and wishing everyone a happy new year
 
Hi Snapper

First of.... Diagnosis pre xmas is hard!!

I remember feeling so ill but left till 6th jan!!! More than 25yrs ago...
Well done tackling pre christmas!!!!

Levels of 10 are pretty good so soon after diagnosis.
Just watch levels of 5 and under... Dont know wgether you drive... But want you to keep safe. Minimise tge times under 5....

Please keep us posted how you are doing..
Christmas n new year are tough...
 
Update

Christmas/New Year is now over and generally my levels have been okay. I have been having a few more hypo's than normal but I think this is because the balance of the insulin i'm taking combined with my pancreas still producing not being right for what i'm eating. I have been told to use a 20:1 ratio but obviously whilst in the honeymoon period i feel it is just a guessing game.

I do drive and i check everytime before i drive. I have had a few where it has been below the 5.5 figure and had to correct it and wait. It is a bit of a pain with work but i guess once i get full control of it my levels will be much more stable.

I have had a horrible chest infection for the past few weeks also so i guess this also may be contributing to some random levels, past few days they have ranged 2.9 - 16 but generally they have been between the 5-10 levels.

I have also starting taking my novorapid after meals because i was finding it was kicking in before my meals were having chance to digest causing hypo's.

I see the Consulstant for the first time soon i was wondering what i could expect with the initial consultation?

Happy New Year to you All.

Thanks
 
Hi again,

I am in the same kind of situation to you , I was diagnosed on the 30th of December just gone.
My levels in the morning are around 10.5. Now its 12.1.
I have been down to 5.2 a couple of days ago but never got near that level ever since.

I have been told to eat low sugar and low carb food which i am finding is fish and cooked meats. But i am always hungry after meals
I hope i can control it asap as i am back in the office tomorrow.

I hoping it will level out in time! :?

Col
 
Hi snapper,

I was diagnosed a week ago and have am up to 14u levemir at night and 6u nova rapid with each meal. My BG today was 12.5 when I got up and is 17.1 as I write this......

I have always been very fit and healthy, have been to the docs about 6 times in 10 years and am completely dumbfounded as to how I am an adult type 1 at the age of 44!

It sounds like your BG is coming into range very nicely, you are either very lucky or have immediately gone into the honeymoon (check the FAQ on honeymoon period). Either way, make sure you keep your DSN and diabetic team comp,Evelyn up to date with e wry thing that is happening to you.

I would be interested to hear how you get on.

Bucco
 
When you are newly diagnosed if type I has been caught early then in all likelihood you still have some working beta cell function... this means that your insulin requirements will be less.. it also means that they can be erratic as your pancreas stop / starts insulin production... this 'phase' of the condition is called the honeymoon period.. in most people this lasts anywhere from a few weeks to perhaps a year until eventually the auto-immune response has killed off your beta cells..
 
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