Hi
I had my pancreas removed last November, and feel so frustrated by the lack of advice.
I've read three books on T1 diabetes, all of which explain the generalities. I wake up at least three times in the night either worrying that my BS is as high as 18-20 then during the day my BS can be as low as 3.2. I have had support from the diabetic nurse, and doctor, but only in looking at my BS chart, and trying different insulins. I have a fridge full of different pens.
I have continually asked to do the Daphne course so that I can have better understanding, and more control rather than blanket doses. The first diabetic nurse told me there wasn't one available. The second nurse told me that she could teach me everything I need to know, but our ten minute appointment only covers her working out new doses. Similarly my diabetic doctor looks at my uncontrollable BS, and tells me what doses to take. At long last he did say that I would benefit from the Daphne course, but had to be referred by a diabetic clinic within a hospital. My appointment was six weeks away. Once referred to the course, there is an eighteen month waiting list.
I have had unrelated peripheral neuropathy for seventeen years. My mobility is severely restricted, so I am paranoid my high BS readings will exacerbate the PN.
The doctor mentioned correction doses, but when I pressed him further on how to administer them, he told me that I would learn how to do it on the Daphne course.
I just feel as though I'm banging my head on a brick wallMy diabetes HAS taken over my life.
I'm testing ten times a day.
Any advice will be very gratefully received.
I had my pancreas removed last November, and feel so frustrated by the lack of advice.
I've read three books on T1 diabetes, all of which explain the generalities. I wake up at least three times in the night either worrying that my BS is as high as 18-20 then during the day my BS can be as low as 3.2. I have had support from the diabetic nurse, and doctor, but only in looking at my BS chart, and trying different insulins. I have a fridge full of different pens.
I have continually asked to do the Daphne course so that I can have better understanding, and more control rather than blanket doses. The first diabetic nurse told me there wasn't one available. The second nurse told me that she could teach me everything I need to know, but our ten minute appointment only covers her working out new doses. Similarly my diabetic doctor looks at my uncontrollable BS, and tells me what doses to take. At long last he did say that I would benefit from the Daphne course, but had to be referred by a diabetic clinic within a hospital. My appointment was six weeks away. Once referred to the course, there is an eighteen month waiting list.
I have had unrelated peripheral neuropathy for seventeen years. My mobility is severely restricted, so I am paranoid my high BS readings will exacerbate the PN.
The doctor mentioned correction doses, but when I pressed him further on how to administer them, he told me that I would learn how to do it on the Daphne course.
I just feel as though I'm banging my head on a brick wallMy diabetes HAS taken over my life.
I'm testing ten times a day.
Any advice will be very gratefully received.