Hi welcome to the forum,
Unfortunately that does sound like it leaves you a bit in the dark since the c peptide is neither high or low. The next step might be a GAD antibody test which if positive confirms T1. This also has a chance of leaving things inconclusive as if it’s negative it doesn’t necessarily mean your T2.
It sounds like you have made great progress on low carb and metformin, so they might just keep you on this path and monitor you. If this stops working you may be late onset T1 and you can get another c-peptide to confirm low insulin production.
It’s horrible being in this in-between state waiting for a concrete diagnosis. By the time I got a c-peptide it showed low enough levels to be T1 but I’m still getting a yearly test to check how things are changing. I tried to focus on just getting my hba1c down and keeping as healthy as possible.
That being said if your not happy with however your doc deals with things then keep pushing until you have a definitive answer. I don’t think you’d be unreasonable to ask for a recheck on the c-peptide in 6 months time.
Yeah, I guess I'll ask for an antibody test. I also read that you can do a C-peptide after injecting X amounts of glucose?
To be honest getting a c-peptide in the first place can be a struggle, a lot of drs will look at your age , weight and assume T2.
Were there other symptoms on diagnosis such as ketones?
Metformin wouldn’t completely be pointless if your T1 I think some people use it in conjunction with insulin & if there was a bigger indicator towards T1 you would have been started on insulin.
Unfortunately you are kind of in a wait & see situation. If low carb works & your hba1c continues to drop its most likely T2. If your levels rise then further investigation is required.
I’ve not had the test your referring to so I’m not sure in what circumstances it’s used in but I’d be doubtful that it would be an option this early on.
Diabetes is a long game, your going to get used to waiting. 3 weeks for a c-peptide is very quick. It’s currently 6 weeks wait for the eye screening results & that’s after an 11 month wait for the test in the first place. I’m still waiting on a dietician appointment as well. See what your doc says next week, maybe they will be more proactive.
I don't believe I was tested for ketones, at least it was never discussed or mentioned.
Hi all,
35 years old and newly diagnosed, but unsure about type.
Started suspecting something was up in march. Eye sight (mostly in the right eye) would sometimes fluctuate in and out of focus. This felt more noticeable while eating candy. Had about one week where i felt extra thirsty and about one week where i had a rash behind both knees, but both of these symptoms (?) went away.
I also had some weight loss, which i noticed in April, about 8-10 kg, from 115ish kg to 106ish kg (BMI 36.3 to 33.5). But I can't say how sudden it was, as I can't remember when I last weighed myself. But in general I have mostly been going upwards in weight these past years. I randomly tested my BS at a dinner party 2-3 years ago, where it showed 12 mmol/l, but I didn't think much of it at the time.
Went to the doctor 3 weeks ago, with fasting BS @ 16.1 mmol/l and HbA1c @ 97 mmol/mol. He did a blood sample for C-peptide and put me on 1500mg Metformin (3x500mg daily). I went low carb diet from this point on, which seemed to get my BS down pretty quick (checking multiple times a day with glucose meter).
Unfortunately, the blood sample spoiled and I had to do a new C-peptide 2 weeks later. Fasting BS was @ 4.4 mmol/l and HbA1c was @ 73 mmol/mol this time. I got results from the C-peptide test today, which was 0.60 nmol/l.
My next doctor's appointment isn't for another week, but from what I can gather, the C-peptide result is pretty much in normal range.
Not sure what to make of this? Or how to get a conclusive diagnosis? Even if my doctor would pick a type, I think I'd still be uncertain without something more conclusive?
Thanks!
Also as you are getting clued up I am going to recommend Robert Lustig's book on metabolism - Metabolical.Thanks to all of you for great information and input. GAD test seems to be next step and what I should to ask my doc for on Tuesday.
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