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Newly diagnosed - what should I expect (NHS)?
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<blockquote data-quote="Chris24Main" data-source="post: 2718129" data-attributes="member: 585131"><p>Hi [USER=591024]@RLCC[/USER] - It's only been a year for me, and I totally remember how vulnerable I felt on my first sets of meetings, and how confusing it all seems.</p><p></p><p>I'm pretty shocked at the level of care you've received, but it's something of a double edged sword in any case; it would seem that there are levels of "looking after you in a caring way" - but the underlying treatment can often simply be down to you... settling in to a cosy sense of the team looking after you did absolutely nothing at all for me.</p><p></p><p>The good news is, I totally agree with the others above; your HbA1c levels are not at the high end of the spectrum. You can turn this around. If you read some of the (particularly the official) guidelines, it's easy to feel that diabetes is a one-way street toward nothing good. I'm more and more feeling that because of this diagnosis, I've been alerted to, and learned about ways of eating that leave me feeling much healthier now than with what I'd been taught my entire life - and I'm thankful to have been forced a little way down the rabbit hole, because I can see now lots of people I love who never had that moment.. get very ill for lots of reasons that I now understand but they never did.</p><p></p><p>Don't be put off by the lack of understanding from a fill-in nurse. The NHS is an amazing organisation, staffed with incredibly dedicated people, but the sheer lack of understanding of what diabetes really is, and what to do about it, it's tough to wrap your head around.</p><p></p><p>But - there are many many things that you can do. I'm not going to bombard you with options, but getting a CGM is a hell of a positive start.</p><p></p><p>I hope that future experiences with your care team are better than this, but the more you can do for yourself, the better. Please keep us in the loop... and try not to stress about it</p></blockquote><p></p>
[QUOTE="Chris24Main, post: 2718129, member: 585131"] Hi [USER=591024]@RLCC[/USER] - It's only been a year for me, and I totally remember how vulnerable I felt on my first sets of meetings, and how confusing it all seems. I'm pretty shocked at the level of care you've received, but it's something of a double edged sword in any case; it would seem that there are levels of "looking after you in a caring way" - but the underlying treatment can often simply be down to you... settling in to a cosy sense of the team looking after you did absolutely nothing at all for me. The good news is, I totally agree with the others above; your HbA1c levels are not at the high end of the spectrum. You can turn this around. If you read some of the (particularly the official) guidelines, it's easy to feel that diabetes is a one-way street toward nothing good. I'm more and more feeling that because of this diagnosis, I've been alerted to, and learned about ways of eating that leave me feeling much healthier now than with what I'd been taught my entire life - and I'm thankful to have been forced a little way down the rabbit hole, because I can see now lots of people I love who never had that moment.. get very ill for lots of reasons that I now understand but they never did. Don't be put off by the lack of understanding from a fill-in nurse. The NHS is an amazing organisation, staffed with incredibly dedicated people, but the sheer lack of understanding of what diabetes really is, and what to do about it, it's tough to wrap your head around. But - there are many many things that you can do. I'm not going to bombard you with options, but getting a CGM is a hell of a positive start. I hope that future experiences with your care team are better than this, but the more you can do for yourself, the better. Please keep us in the loop... and try not to stress about it [/QUOTE]
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