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Type 1.5/LADA Diabetes
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<blockquote data-quote="Marikev" data-source="post: 2671741" data-attributes="member: 558151"><p>Hei Sandra, I was diagnosed with type 1 18 months ago now, at the grand old age of 68! Had been going to see my GP’s for months to try and get to the bottom of ‘tummy troubles’, OK acute and urgent diarrhoea. Somebody noticed my thyroid levels were a little bit out of range, was back and forth to have those checked and suddenly my blood sugar level went very high.. 31! My then GP tried to call me, then my husband, but our phones were on charge, on silent.. so an ambulance crew were despatched to our house! We woke up on a fine summer morning to find two burly ambulance crew on our landing! we live in rural Norway and don’t lock our doors! </p><p>was told I should call my GP who told me to go to the main hospital asap, about a 2 hour trip away.</p><p>was directed to the equivalent of A& E at the hospital, where before I knew it they had me in a bed, on an insulin drip and putting an ‘inmate’s’ wristband on me. Was in hospital for 5 days learning how to finger stick and inject insulin. They wouldn’t tell me what sort of diabetes it was until they had done the blood tests and 2 weeks later I had a phone call from a senior doctor telling me the tests had come back as type 1, and he was very sorry!</p><p>I asked in A&E if by losing some more weight, exercising more and eating better I could come off the insulin and was told an emphatic ‘NO’. </p><p>since then have been sent Libre 2 CGM’s and have my long term insulin changed to Tresiba, which has stopped the morning spikes I had with the other insulin they started me on. Use very little insulin during the day. </p><p>started off following the regime set in the hospital of 4 meals a day, but since then have worked to my blood sugar rather than regimented meal times.</p><p>a fellow type 1 at work told me I now I had to now ‘eat clean’ ie meat and fish and vegetables and not so much of the pizzas and cakes that are prolific here.</p><p>Have been blessed with a wonderful diabetic specialist nurse who has given advise on how I can exercise without going hypo. </p><p>had my driving licence revoked for 6 weeks and am terrified of losing it again, if I have a hospitalising hypo! </p><p>been offered an insulin pump, but because I seem to need so little insulin atm I don’t think for me it is worth the hassle. In my view more tech=more stress. </p><p>when I was first let back into the wild I was keeping my BS around 5, but then realised I felt rubbish, so I now prefer it more around 6-8, depending on how active I am. Managed to miss a ferry yesterday as I still forget to allow the extra time getting out the house to check and sometimes fix blood sugar before driving! I keep a pouch of baby yoghurt in the car door, if my BS decides it’s going to drop suddenly!</p><p>I think I seem to be at a slightly later stage to you, so not sure how helpful all this is for you. I am seeing a diabetic specialist doctor next week, for the first time since diagnosis, so hoping to have some questions answered. </p><p>one of my problems has been that the medics have assumed that being type 1 I was diagnosed years ago and assume I know what I’m doing! But they have been checking out other things to make sure I have no other auto immune diseases. Had all the scans, and some on my liver! But since I stopped taking alcohol it seems the high liver function tests have come back to a normal range.</p></blockquote><p></p>
[QUOTE="Marikev, post: 2671741, member: 558151"] Hei Sandra, I was diagnosed with type 1 18 months ago now, at the grand old age of 68! Had been going to see my GP’s for months to try and get to the bottom of ‘tummy troubles’, OK acute and urgent diarrhoea. Somebody noticed my thyroid levels were a little bit out of range, was back and forth to have those checked and suddenly my blood sugar level went very high.. 31! My then GP tried to call me, then my husband, but our phones were on charge, on silent.. so an ambulance crew were despatched to our house! We woke up on a fine summer morning to find two burly ambulance crew on our landing! we live in rural Norway and don’t lock our doors! was told I should call my GP who told me to go to the main hospital asap, about a 2 hour trip away. was directed to the equivalent of A& E at the hospital, where before I knew it they had me in a bed, on an insulin drip and putting an ‘inmate’s’ wristband on me. Was in hospital for 5 days learning how to finger stick and inject insulin. They wouldn’t tell me what sort of diabetes it was until they had done the blood tests and 2 weeks later I had a phone call from a senior doctor telling me the tests had come back as type 1, and he was very sorry! I asked in A&E if by losing some more weight, exercising more and eating better I could come off the insulin and was told an emphatic ‘NO’. since then have been sent Libre 2 CGM’s and have my long term insulin changed to Tresiba, which has stopped the morning spikes I had with the other insulin they started me on. Use very little insulin during the day. started off following the regime set in the hospital of 4 meals a day, but since then have worked to my blood sugar rather than regimented meal times. a fellow type 1 at work told me I now I had to now ‘eat clean’ ie meat and fish and vegetables and not so much of the pizzas and cakes that are prolific here. Have been blessed with a wonderful diabetic specialist nurse who has given advise on how I can exercise without going hypo. had my driving licence revoked for 6 weeks and am terrified of losing it again, if I have a hospitalising hypo! been offered an insulin pump, but because I seem to need so little insulin atm I don’t think for me it is worth the hassle. In my view more tech=more stress. when I was first let back into the wild I was keeping my BS around 5, but then realised I felt rubbish, so I now prefer it more around 6-8, depending on how active I am. Managed to miss a ferry yesterday as I still forget to allow the extra time getting out the house to check and sometimes fix blood sugar before driving! I keep a pouch of baby yoghurt in the car door, if my BS decides it’s going to drop suddenly! I think I seem to be at a slightly later stage to you, so not sure how helpful all this is for you. I am seeing a diabetic specialist doctor next week, for the first time since diagnosis, so hoping to have some questions answered. one of my problems has been that the medics have assumed that being type 1 I was diagnosed years ago and assume I know what I’m doing! But they have been checking out other things to make sure I have no other auto immune diseases. Had all the scans, and some on my liver! But since I stopped taking alcohol it seems the high liver function tests have come back to a normal range. [/QUOTE]
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