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NEWLY DIAGNOSED

Toodles

Newbie
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1
Hi - I'm newly diagnosed T2 in early August. I had proteinurea during my first pregnancy and was told later that I was borderline diabetic but I was never given any advice about what to do about it, nor was it ever suggested I should have blood tests.

In my late 30's I suffered from chronic fatigue for more than 20 years. I hit the menopause early, had a lot of stress in my life and in my 40's I looked like a stick insect with all the symptoms of diabetes, drinking lots, urinating lots, losing weight etc - yet still no diagnosis. My GP decided I was depressed and prescribed antidepressants and the other symptoms were ignored. I've changed doctors several times but of course medical records travel with you and once you have a diagnosis of depression, they tend to see every symptom you complain of as a manifestation of depression.

In the meantime, I developed IBS, asthma, Meniere's Disease, gastritis, hiatus hernia, gynae probs, angioedema and two episodes of anaphylactic shock which nearly cost me my life. I'm now overweight because these illnesses have prevented me from exercising like I used to.

After all that, I finally got a diagnosis of T2 diabetes and I'm both elated because I'm finally, hopefully, getting the right treatment and I'm very angry because I think had I been diagnosed sooner, I may not have suffered all these other complications and misdiagnoses and be a lot fitter than I am now.

I read recently that there are around 850,000 people with undiagnosed diabetes. And what I want to know is WHY diabetes is so difficult for the NHS to diagnose? And also, HOW do they know there are 850,000 with undiagnosed diabetes unless they can spot it in advance? And if they can spot it in advance - why the hell don't they treat it BEFORE it becomes so severe?

Perhaps a simple lowering of the pass/fail level of the blood test would be all it would take? Maybe people with a level of 5 instead of 6 should be deemed diabetic for instance?

I'm interested to hear what others feel about the length of time it took for them to be diagnosed. How long did you experience symptoms before you were diagnosed?
 
Hi Toodles and welcome to the forum :)
I don't know how long it was before I was diagnosed - I suspect it was a long time since I hadn't had a blood test for years. I never had any symptoms.

Here is the information which we give to new members which I think you will find useful. Ask all the questions you like and someone will be able to answer you.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
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Please sign our e-petition for free testing for all type 2's; here's the link:
http://www.diabetes.co.uk/petition/

Do get your friends and colleagues to sign as well.
 
Hi Toodles, Welcome to the Forum, I think you'll like it here!

I think I was at least pre-diabetic if not fully diabetic for a couple of years before I was diagnosed. I had chronic athletes foot and then thrush for weeks on end, I felt like I was getting old before my time. On one business trip I had a couple of sips of beer and felt as if I was completely drunk, so wierd. The next day I couldn't get out of bed or get going - complete exhaustion and extreme thirst.

There were several opportunities that the doctors missed to diagnose me. I had reccuring thrush which I went to the doctor for several times, I fainted at the gym once and an ambulance was called. When they tested my blood it was in the 6s. I visited the doctor the next day - no blood test to follow up, just platitudes.

Finally, I couldn't cope with the extreme exhaustion I was feeling - I also had gyne problems and thought my exhaustion was to do with lack of iron. I went to my docs to ask for a blood test to see if I had low iron. He said I would like to test for diabetes at the same time and bada bing.

There are days when I wish they had identified the risk earlier but actually because of the changes I have made to diet and lifestyle I feel better than I have for many years. I know there will be complications in the future but right now I feel goooooood.
 
Hi Toodles, I'm a newbee too. Not diagnosed with diabetes yet, hopefully wont be, but its in the family. I do feel for you with the doctors ineptitude, I have felt exhausted most of my life - really puts the mockers on things you want to do, like go to night school to learn extra stuff etc. etc. when I say exhausted it was the sort of exhausted where you just want to sit in the gutter and not move or breath 'cos its all too much effort - mine was due to a cream-crackered thyroid, but the readings were always 'within normal range'. Well, it was the very top end of the normal range and plainly was not normal for me. At long last I am on treatment, but you look back and think about your life that the stupid berks wasted. Still onwards and upwards. Hopefully you will find this forum supportive and actually start to feel better now you know whats wrong. Good luck.
 
I love ur post cos I was a week away from the age of 41 ( dec 2011 )when I was taken into intensive care with DKA and was then told I was type 1 and was put on 4 jabs a day. In in beginning of 2011 I was always being sick and was just always feeling unwell and ended up spending time in hospital a few times they didn't pick up I was diabetic so I understand what u r saying about the doctor thinking u was just depressed. If u need to talk then maybe we can help each other cos I'm finding it hard also cos I think the nhs should have picked it up earlier my email is Jsummerill@ live.co.uk
 
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