Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Diabetes Soapbox - Have Your Say
NHS Data grab/GPDPR
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="bulkbiker" data-source="post: 2410929" data-attributes="member: 219467"><p>As of 01 September 2021NHS digital will take a copy of all your GP held medical data from the last 10 years and load it into a new database.</p><p>Ostensibly to assist with planning and research.</p><p></p><p>However once the data has been "scraped" it would seem you have no rights over what is done with it. </p><p></p><p>Unusually if you don't want your data used in this way you have to opt-out rather than the usual opt -in to data sharing (why you have to agree to T&C when you sign up for something new online).</p><p></p><p>Some may say its a "conspiracy theory" to imagine that a huge database of everybody's medical records could be very useful (and no doubt fairly profitable). </p><p></p><p>There have been various exposures of other data that could be included such as mental health assessments, employment status and any criminal record. Once this is tied into your NHS number and NI number then virtually nothing you do will be untraceable.</p><p></p><p>The BMA is cautiously welcoming..</p><p></p><p><a href="https://www.bma.org.uk/news-and-opinion/statement-on-gp-data-for-planning-and-research" target="_blank">https://www.bma.org.uk/news-and-opinion/statement-on-gp-data-for-planning-and-research</a></p><p></p><p>Others are more wary. The data is allegedly anonymised but still with "unique identifiers" which can be used to identify you.</p><p></p><p>[ATTACH=full]49946[/ATTACH] </p><p></p><p>From here </p><p></p><p><a href="https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research" target="_blank">https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research</a></p><p></p><p>So it's up to you.. an opt out is available but only until 23 June 2021.</p><p></p><p>It's not just me being paranoid either....</p><p></p><p><a href="https://www.change.org/p/the-department-for-health-and-social-care-stop-the-share-of-nhs-data-and-paid-access-without-informed-consent?redirect=false" target="_blank">https://www.change.org/p/the-department-for-health-and-social-care-stop-the-share-of-nhs-data-and-paid-access-without-informed-consent?redirect=false</a></p></blockquote><p></p>
[QUOTE="bulkbiker, post: 2410929, member: 219467"] As of 01 September 2021NHS digital will take a copy of all your GP held medical data from the last 10 years and load it into a new database. Ostensibly to assist with planning and research. However once the data has been "scraped" it would seem you have no rights over what is done with it. Unusually if you don't want your data used in this way you have to opt-out rather than the usual opt -in to data sharing (why you have to agree to T&C when you sign up for something new online). Some may say its a "conspiracy theory" to imagine that a huge database of everybody's medical records could be very useful (and no doubt fairly profitable). There have been various exposures of other data that could be included such as mental health assessments, employment status and any criminal record. Once this is tied into your NHS number and NI number then virtually nothing you do will be untraceable. The BMA is cautiously welcoming.. [URL]https://www.bma.org.uk/news-and-opinion/statement-on-gp-data-for-planning-and-research[/URL] Others are more wary. The data is allegedly anonymised but still with "unique identifiers" which can be used to identify you. [ATTACH=full]49946[/ATTACH] From here [URL]https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research[/URL] So it's up to you.. an opt out is available but only until 23 June 2021. It's not just me being paranoid either.... [URL]https://www.change.org/p/the-department-for-health-and-social-care-stop-the-share-of-nhs-data-and-paid-access-without-informed-consent?redirect=false[/URL] [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Diabetes Soapbox - Have Your Say
NHS Data grab/GPDPR
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…