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Diabetes Soapbox - Have Your Say
NHS Data grab/GPDPR
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<blockquote data-quote="TriciaWs" data-source="post: 2412033" data-attributes="member: 475901"><p>The issue with trying to anonymise this amount of data is that even without a backdoor/key it will be easy for some people to be identified.</p><p>The Census team at ONS go to a lot of effort to anonymous our data, If you are in a rare group they will only publish at national level, if a very rare group you'd disappear from the data. They also have checks to try to make the data as accurate as they can. I've not seen any commitment to do either of these with the NHS database.</p><p></p><p>EG, if I belonged to a minority religious group and I have a mix of health conditions that means I am the only individual in my region with these conditions and of this faith, even if they remove my name and exact location people could exact a lot of personal data about me.</p><p>If you are an average person with a common disease you'd be fine - unless they have a data breach.</p></blockquote><p></p>
[QUOTE="TriciaWs, post: 2412033, member: 475901"] The issue with trying to anonymise this amount of data is that even without a backdoor/key it will be easy for some people to be identified. The Census team at ONS go to a lot of effort to anonymous our data, If you are in a rare group they will only publish at national level, if a very rare group you'd disappear from the data. They also have checks to try to make the data as accurate as they can. I've not seen any commitment to do either of these with the NHS database. EG, if I belonged to a minority religious group and I have a mix of health conditions that means I am the only individual in my region with these conditions and of this faith, even if they remove my name and exact location people could exact a lot of personal data about me. If you are an average person with a common disease you'd be fine - unless they have a data breach. [/QUOTE]
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