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Type 1 Diabetes
No idea what I'm doing - advice needed!
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<blockquote data-quote="Katie Kerr" data-source="post: 2390504" data-attributes="member: 541764"><p>Hi everyone, </p><p></p><p>I'm posting because I'm in one those phases where you just get so sick of being T1 and I feel like 7 years into it I still have absolutely NO idea what I'm doing. I appreciate I do need to speak to my healthcare team, but that is easier said than done with NHS waiting lists, so any advice at all would be much appreciated while I wait. Thank you <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> </p><p></p><p>My current situation:</p><ul> <li data-xf-list-type="ul">On paper my control looks 'good', (HbA1c 6.5%, ~70% in range (4-10mmol) on freestyle libre), but day to day I do not feel in control </li> <li data-xf-list-type="ul">Carb-counting is just not working for me, and that saying of "You should be able to eat 15g of carbohydrate without needing insulin", doesn't seem to be true (is this just a myth that dieticians say??). For example, I could eat a protein bar with 10g carbs and my blood sugars would spike up to 13mmol. I don't know if the issue is with my carb-counting, or my background insulin. And I don't know how to work it out, nevermind how to fix it. </li> <li data-xf-list-type="ul">Midday is when I have my worst spikes. Everyday I eat a salad (chicken+lettuce+mayo+tomatoes) and a natural yoghurt (<5g carbs) with a decaf coffee, and I still normally spike up to about 12mmol. Surely there is no carbs in this???</li> <li data-xf-list-type="ul">I am on 25 units of Tresiba (once a day at night), which generally causes me to wake around 3.7mmol, sometimes lower! But if I reduce the tresiba to avoid these waking lows, I seem to have worse control of my blood sugars throughout the day (sometimes having spikes after having not eaten anything for 3+ hours?!)</li> </ul><p>I have a few questions too, sorry if these are obvious, but I know literally zero other diabetics and it would just be helpful to chat.</p><p></p><p>1 - Do people experience daily highs (10+) or is this just my bad control? </p><p>2 - Does carb counting really work for people who have somehow nailed their ratios, or am I better to just avoid carbs?</p><p>3 - Does anyone split their background insulin? If so, why? Wondering if this could help with midday spikes if I take in the morning and evening.</p><p></p><p>Feeling a bit exhausted and fed up with it all, any help is much appreciated.</p><p></p><p>Thanks,</p><p>Katie</p></blockquote><p></p>
[QUOTE="Katie Kerr, post: 2390504, member: 541764"] Hi everyone, I'm posting because I'm in one those phases where you just get so sick of being T1 and I feel like 7 years into it I still have absolutely NO idea what I'm doing. I appreciate I do need to speak to my healthcare team, but that is easier said than done with NHS waiting lists, so any advice at all would be much appreciated while I wait. Thank you :) My current situation: [LIST] [*]On paper my control looks 'good', (HbA1c 6.5%, ~70% in range (4-10mmol) on freestyle libre), but day to day I do not feel in control [*]Carb-counting is just not working for me, and that saying of "You should be able to eat 15g of carbohydrate without needing insulin", doesn't seem to be true (is this just a myth that dieticians say??). For example, I could eat a protein bar with 10g carbs and my blood sugars would spike up to 13mmol. I don't know if the issue is with my carb-counting, or my background insulin. And I don't know how to work it out, nevermind how to fix it. [*]Midday is when I have my worst spikes. Everyday I eat a salad (chicken+lettuce+mayo+tomatoes) and a natural yoghurt (<5g carbs) with a decaf coffee, and I still normally spike up to about 12mmol. Surely there is no carbs in this??? [*]I am on 25 units of Tresiba (once a day at night), which generally causes me to wake around 3.7mmol, sometimes lower! But if I reduce the tresiba to avoid these waking lows, I seem to have worse control of my blood sugars throughout the day (sometimes having spikes after having not eaten anything for 3+ hours?!) [/LIST] I have a few questions too, sorry if these are obvious, but I know literally zero other diabetics and it would just be helpful to chat. 1 - Do people experience daily highs (10+) or is this just my bad control? 2 - Does carb counting really work for people who have somehow nailed their ratios, or am I better to just avoid carbs? 3 - Does anyone split their background insulin? If so, why? Wondering if this could help with midday spikes if I take in the morning and evening. Feeling a bit exhausted and fed up with it all, any help is much appreciated. Thanks, Katie [/QUOTE]
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