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Message: <blockquote data-quote="HarleyRH" data-source="post: 1681287" data-attributes="member: 468363">Okay, this won’t be simple to explain but I need help so I will try.I am a 27 year old female with Ehlers-Danlos Syndrome and gastroparesis. I don’t have much oral intake, less than 500 cals a day. I have a nasal-jejunal feeding tube. I have for a long time experienced dizzyness, lightheadedness, feeling very spaced, been unable to wake up and have been trying to get to the bottom of this and have discovered I have almost constant low blood sugars, rarely getting to high 4s and frequently being low 3s. The lowest I’ve caufht with a BG monitor is 2.2 (I had one reading 0.9 and a few “lo” but I assume they were errors).I’ve had a short synachten test and don’t have addisons. I as well as have constant lows also have reactive Hypoglycemia: within 10 minutes of finishing a glucose drip; I had a sugar of 3.9 on a hospital monitor (initially spiked to 11.7). I’m at my wits end and now have a Freestyle Libre: which shows me hitting 2.5 in my sleep. I have Kids and am scared of not waking up and all of my health professionals that deal with me are getting all mixed up so I’m not getting any closer to seeing an endocrinologist anytime soon. So my question is, at what point should I be seriously worried? Am I being ridiculous worrying over readings in the 2s? I’m so tired and exhausted, I’ve been under 4 almost all of today and can’t think straight. Thanks</blockquote>

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