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Message: <blockquote data-quote="lindijanice" data-source="post: 1682852" data-attributes="member: 446215">Hey HarleyRH, welcome to the Forum. I am so sorry to hear about your dilemma especially when you have kids which must increase your anxiety, which doesn't help I'm sure....Have you experimented at all with splitting your tube feed, say early evening and then finishing overnight, or late evening? Do you know the carb count for your feeds? I'm just wondering if you are getting too much overnight, like a glucose dump and then your RH kicks in....which complicates things....Would the company that makes up your feeds be an avenue to explore for some explanation if they are aware of your complete medical situation? Maybe they could tweak your feeds a bit more like with maybe a little higher fat content? I would really be pushing my Dr to explain why he says you are RH, especially if he hasn't tested you for it!! That doesn't really sound like due diligence to me.....and to not have referred you on an emergency basis to a specialist is not acceptable. So please, be firm and insistent, you are your best advocate, so go for it!! One last thing, are you able to be roused, like if one of the little ones is crying or comes to your bed to wake you because of a tummy ache or whatever? If you are, perhaps you can ease your anxiety a bit by knowing that you can respond or act if needed....my thoughts and prayers are with you/Blessings/L</blockquote>

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