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Non prolific retinopathy, so frightened, upset and confused
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<blockquote data-quote="Aoife" data-source="post: 79362" data-attributes="member: 20194"><p>Hi everyone</p><p></p><p>I am so scared I think I am literally losing all my marbles. I am new to the forum, browsing around today in search of diabetes material and found here <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> Im 24 and Ive been diabetic for thirteen years.</p><p></p><p>I was told today that I have advanced non prolific retinopathy and I just dont know how to move forward. I dont even know exactly what it means. The doctor said a variety of phrases that have just confused the hell out of me, from "its not too bad" to "there is however quite a bit of damage" to "well theres nothing I need to treat" (im assuming treatment refers to laser therapy) </p><p></p><p>I *think* (but am not sure) that its a good thing that she said theres been no change since she started monitoring my eyes last september- Ive been seen roughly every three months. So the damage occured before then- but why am I not being offered treatment if its "advanced"??? what the hell?? advanced non prolific sounds appalling :cry: </p><p></p><p>I do see another eye doctor who has been doing the diabetes eye exam on me for maybe 8 years once a year, and hes said i dont need treatment (at the minute) but when he saw me in january he said he wanted me back in nine months instead of a year which freaked me out big time as well....ohhh i am just so scared and feel so helpless. My diabetes team are nice but i think they think im a bit of an idiot, i had issues with disordered eating and depression a few years ago (managed to mostly kick them) and for the last two years have been working to manage my diabetes right.</p><p></p><p>I am extremely angry too that no one saw fit to tell me- until a few months ago- that when you have very poor control one of the worst things you can do is make a sudden change- I dropped my hbA1c from approx 11 (yes I know- dreadful beyond belief) to about 8 in a couple of months about two years ago. Which my problems probably all stem from. </p><p></p><p>Oh i just dont know <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /> sorry for the essay, had to vent</p></blockquote><p></p>
[QUOTE="Aoife, post: 79362, member: 20194"] Hi everyone I am so scared I think I am literally losing all my marbles. I am new to the forum, browsing around today in search of diabetes material and found here :) Im 24 and Ive been diabetic for thirteen years. I was told today that I have advanced non prolific retinopathy and I just dont know how to move forward. I dont even know exactly what it means. The doctor said a variety of phrases that have just confused the hell out of me, from "its not too bad" to "there is however quite a bit of damage" to "well theres nothing I need to treat" (im assuming treatment refers to laser therapy) I *think* (but am not sure) that its a good thing that she said theres been no change since she started monitoring my eyes last september- Ive been seen roughly every three months. So the damage occured before then- but why am I not being offered treatment if its "advanced"??? what the hell?? advanced non prolific sounds appalling :cry: I do see another eye doctor who has been doing the diabetes eye exam on me for maybe 8 years once a year, and hes said i dont need treatment (at the minute) but when he saw me in january he said he wanted me back in nine months instead of a year which freaked me out big time as well....ohhh i am just so scared and feel so helpless. My diabetes team are nice but i think they think im a bit of an idiot, i had issues with disordered eating and depression a few years ago (managed to mostly kick them) and for the last two years have been working to manage my diabetes right. I am extremely angry too that no one saw fit to tell me- until a few months ago- that when you have very poor control one of the worst things you can do is make a sudden change- I dropped my hbA1c from approx 11 (yes I know- dreadful beyond belief) to about 8 in a couple of months about two years ago. Which my problems probably all stem from. Oh i just dont know :( sorry for the essay, had to vent [/QUOTE]
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