Not diabetic anymore??? Confused as heck :(

Gezzabelle said:

Thank you....wouldn't have been so bad if the nurse hadn't been at least 18 stones and could hardly walk for the fat she was carrying. Her supply of chocolate was also on her desk along with her never ending texts she was answering from her mates !!!

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The chocolate is insensitive to say the least, the text messaging however is grounds for a formal complaint.

Yea .. Congratulations on the levels ..and for realising that with this your Dr is going to be no help whatsoever.... I am also in remission..but my dbn is saying to me to eat more carbs so I can still show in their system as diabetic..completely bonkers ....
I can eat carbs now without affecting my bs .. But I don't want to eat them ! I love my new diet and still could lose more weight.
Hope your scan goes ok

I often wonder what these carb-pushing, test-dodging HCPs would do if they were diagnosed themselves

Well done @Gezzabelle

@Gezzabelle

Have a read of the haemochromatosis part of this link.

http://www.anapsid.org/cnd/diffdx/irondisease.html

@Gezzabelle . Well done! Fantastic achievement! I'm not surprised you were irritated with your diabetic nurse! She clearly does not understand the diabetes / carb connection, and she she certainly doesn't appreciate your fantastic achievement!

Brilliant news Gezza.....well done.

At least you (and a lot of us) are determined not to be a huge financial burden on the NHS even if they appear to want us to be.

Enclave said:

Yea .. Congratulations on the levels ..and for realising that with this your Dr is going to be no help whatsoever.... I am also in remission..but my dbn is saying to me to eat more carbs so I can still show in their system as diabetic..completely bonkers ....
I can eat carbs now without affecting my bs .. But I don't want to eat them ! I love my new diet and still could lose more weight.
Hope your scan goes ok

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Firstly CONGRATULATIONS Gezzabel for all of your hard work. All those times you've passed on the bread/rice/cakes...your vindicated with non diabetic BG levels. I salute you.

I cannot believe that HCP's are telling people with proven impaired glucose metabolisms, to eat carbs with abandon. Are they trying to keep themselves in a job due to Diabetic complications?
That you have to eat carbs to bring up your BG amounts, which is proven to be damaging to our bodies, just so the system will recognise you as a Diabetic?
I feel like I wanna march, sign a petition, burn a effigy of a loaf of bread.... seriously though, its really discouraging to have a health system, that is clearly not invested in making its users healthy... but invested in what? Losing money? Or creating funds for the stakeholders at pharmaceutical companies? Surely a nation of footless blind people can't work to pay taxes....err rant over. Well done and thank you for posting.
GC

Congratulations and well done - and in record time too!
If I was wicked I'd wish diabetes on your miserable nursie...

So a gold star for you:



My own GP did tell me that if I got my weight back down to normal, my pancreas might be able to cope once more, and I could possibly end up non-diabetic again, so I got a reason for his suggestion. But I'd be very wary about changing my diet back to a carb laden one if this was ever to happen.

I can't complain about my diabetic foot and eye care, but that's about it - I was I told I was well controlled by practice diabetes "specialist" last summer and have been more or less abandoned since then. I was really grateful that I'd discovered this forum before I had the pleasure of meeting him. It's my own GP who arranged my last HbA1c and I'll go to him for any further tests.

It's no wonder if the NHS is under strain...

Robbity

Gezzabelle said:

Wow interesting reading thank you. My nurse said as it has gone up considerably since my last test that it could be the fact I am eating more protein and meat/fish etc. The hard fact though is my body can't cope with it which makes it all a little difficult as I can't eat carbs much so there isn't much else left to eat. I hadn't realised that it could do so much damage. Saying that, I don't have any of the symptoms other than the late onset diabetes and an early menopause and possibly high levels of estrogen that cause problems with various symptoms. Hopefully I will get an appointment for the scan soon and find out more. Not sure how I can reduce the amount of iron in my food as most of it is protein based and therefore full of it

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Could you not try cutting down your meat and fish meals .. Maybe to just one or two days in a week go veggie for the rest of your meals .. Veggies are not as high in protein as meat ..

Gezzabelle said:

I could do that easily but to be honest I am unsure of which veggies I am allowed to eat....need to do some research on that

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If your looking for what are ok carb wise .. Then just cut right down or loose potatoes ..beetroot is also quite high .as are most root vegetables . Peas are another highish in carbs .. But I was always ok with peas ... Butternut squash can be high .. But I do eat all veggies .. As I am a vegetarian ! But the wife will calculate the carbs and adjust to keep within my carb counting.

Edit to add veggie link

Keeping your fats up should stop the weight loss .. I have olive oil or coconut oil to keep my calories up

Gezzabelle said:

Just had my new HbA1c result and it's down from 6.5 or 48.5 to 5.7 Folate is down from 19.1 to 17.1 Ferratin is up from 167 to 225 which is why I have to have a liver scan. My fasting BG is 5.4 and my ESR is 35 which she says is normal. My cholesterol was HDL normal Triglycerides normal and LDL normal ...overall it is 5.8 and she wants it down to 5.2 which is confusing as it is all normal ? She now says I am NOT diabetic as my new HbA1c is 5.7...only achieved by eating like a type 2 diabetic!!!!. She says now to go back to eating cereal for breakfast, bread, potatoes etc and get my ferrratin re tested in 3 months. I am totally confused and according to the nurse I am not diabetic ...BUT....WILL be if I eat carbs again and am retested in 12 months !!!! Confused as hell [/QUOTE

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Great news, all the effort paid off! Hope you can feel a little bit more relaxed now that you got all your tests out of the way.

Your high ferritin is probably haemochromatosis - another serious condition your HCPs have overlooked, I think. The test for this is not a liver scan, it's genetic testing of a blood sample. You may not even need the liver scan. If you have it, forget treating it with food changes, that won't do a thing. You would need to donate blood until the levels come down. Your level is not too high (it can be in the 1,000s) so you might only need to do it a handful of times, then once every 3 months or so. I don't know, but this is just to give you an idea of how haemo is treated. IMO with the increased red blood cells, something else could be going on so you should be referred to a haemotologist (blood specialist). You might still need the liver scan, but if I were you I would be more comfortable with a haemotologist deciding that.

I am a carrier for two types of haemo, so if I had kids with someone who was a carrier for one of those types, our kids would have full-blown haemo and need blood taken off periodically. I don't have kids. If you test positive for haemo, your whole family should also be tested. I was the first in my family to be diagnosed, and because of that, the life of one of my uncles was probably saved.

It's a very common condition. Approx 1 in 8 people of celtic descent are thought to be carriers. Doctors are supposed to be aware of it and to notice it when ferritin is high, but despite decades of awareness-raising education, some still don't.

Oh and the nurse who answered text messages during a consultation? I would love to see a formal complaint.

Well done on kicking diabetes into remission, you inspire me

Gezzabelle said:

I am about to add that to my shopping list even though the nurse said high fat is totally wrong!...but as she got little else right I don't really care. I am being pushed to lower cholesterol that by her own admission is already normal so not going to worry too much about it right now.

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Well done @Gezzabelle on your results! I had the same issue when I had my review in July - hba1c was 36 and cholesterol 4.8 (HDL 2.5/LDL 2.3)but she wanted it lower and told me that I was eating too much fat and should eat low fat foods. Then she suggested statins again even though she knew that last time I was on them they made me ill and increased my hba1c from 48 to 58 - no need to tell you how that conversation finished! She got her revenge though because she wants me to have another review in January next year! My philosophy is if it ain't broke don't fix it so just carry on with what you're doing because it's obviously working!