Numbess after Carbs/Sugar

[Ibra1739]

So this is a note I wrote to myself today:
“The key to your health - it’s not rocket science: No beer/alcohol, no bread, no grains, no seeds/legumes, no potatoes, no fructose, no sugar, no eggs, no seed oils/no takeout.“

This is my solution after years of having this condition and it is based on self observation.

Additional notes: I try to get all my electrolytes especially Magnesium and Calcium. I use the Citrate forms. I take a multivitamin and make sure I’m getting enough D3 and iodine. I try to be mindful of glyphosate consumption. If I eat bread or wheat, it’s organic. It’s also in most lentils, soy and corn. All vegetables are mostly carbs by dry weight so it has to be limited also.

Thank you for the valuable information. Our conditions are about 99% similar, and it is unfortunate we still haven't found a cure. For now, it seems we have to avoid the culprit foods, and that can be quite inconvenient. I've recently started taking Vitamin D, but I'm unsure if I'm on the right dosage. Can you explain how iodine could benefit our condition?

It sounds like I should be cautious about glyphosate as well. Please keep me updated if you receive a diagnosis or discover a cure. I’m only 29 and have been dealing with this since I was 25. My job is stressful, and it’s frustrating that I can’t enjoy a nice meal when I get paid. I'm mostly limited to just three or four foods, which adds to the hassle. I really hope we can find a solution to this perplexing condition soon.

 

[Ibra1739]

Hi Ibra,

Your symptoms (everything mentioned except for the salt) I have experienced. Even tea sometimes but more often when I add lemon. I can’t tell you exactly what’s happening, but I can tell you what helps me, sometimes, to the point I have no symptoms if I am careful (my solution in a separate post below), but like you I frequently break my own rules.

A term I discovered is: ‘transient glucose-induced neuroinflammation’. I can’t find too much information on it but what I found referred to the brain, but I wonder whether it can affect nerves in extremities like my feet and hands (and lips/mouth) where I experience symptoms the most.

My own reasoning came to the determination that it’s inflammation in response to certain foods. I can’t tell you the mechanism. I also get very fast reactions especially when I’m sensitive. Sometimes I’m not so sensitive and I can eat carbs, sometimes I can’t even eat a little tiny bit. I can get reactions to eating just 2 slices of orange certain days.

Some ideas I considered is that certain foods can give you permeable gut and then particles/matter entering your blood stream can cause immune/autoimmune reactions leading to heightened sensitivity or inflammation.

Anyway I’ll post my personal solution below.

Hi Nmori,

Thank you for your response. I've come to realize that when I find a food that doesn't trigger reactions for me, like non-carb options such as peanut butter and tea, I tend to rely on those because my food options are limited. Eventually, I start having similar reactions even to these previously safe foods. There was a time when eggs and avocados also began to cause issues for me.

Interestingly, my reactions to salt started suddenly about three years after I developed this condition. Even with carbohydrates, I’ve noticed that certain ones that used to be fine, like wholegrain rice, bread, watermelon, and plums, eventually lead to reactions as well. It feels like my body is rejecting everything, which is really frightening.

What puzzles me is how quickly my symptoms appear—often within a minute or less. This makes me doubt that it’s related to digestion since I would expect some time to pass before any symptoms from malabsorption would show up. People around me think I’m overreacting, but the pain and symptoms I go through are unbearable. I did find that when I started my dose of Thiamine HCL and Benfotamine, it did delay the time the symptoms appear to say about 15 - 30 minutes. However, it's all back to where it started. I'm now considering taking TTFD version of B1.

Will update how it goes.

 

[Nmori]

Have you tried TTFD version of B1?

I have not.

 

[Nmori]

Thank you for the valuable information. Our conditions are about 99% similar, and it is unfortunate we still haven't found a cure. For now, it seems we have to avoid the culprit foods, and that can be quite inconvenient. I've recently started taking Vitamin D, but I'm unsure if I'm on the right dosage. Can you explain how iodine could benefit our condition?

It sounds like I should be cautious about glyphosate as well. Please keep me updated if you receive a diagnosis or discover a cure. I’m only 29 and have been dealing with this since I was 25. My job is stressful, and it’s frustrating that I can’t enjoy a nice meal when I get paid. I'm mostly limited to just three or four foods, which adds to the hassle. I really hope we can find a solution to this perplexing condition soon.

“What puzzles me is how quickly my symptoms appear—often within a minute or less.”

Which symptoms specifically do you get in a minute or less?

I don’t get any symptoms that fast. I’ll have to pay attention to see if I ever do. I can get symptoms with 10-20 minutes however. My suspicion is that it’s related to inflammation/an inflammatory reaction involving the nerves.

Sorry to hear about your condition. Yes it is scary. Please continue posting here if there are any changes.

As far as the diet I try to follow - I almost never follow it perfectly or even close. Even a small salad will give me symptoms especially on its own. There is only one category of food that doesn’t give me symptoms and that is certain animal proteins like fish, beef or pork and the problem with that is I feel like most of it in regular markets are tainted in one way or another (eg farmed salmon, USDA sprays beef w peracetic acid). I have to get my beef delivered and it’s very expensive. It’s very expensive to eat mostly animal proteins. I can’t afford it.

You mentioned peanut butter - I can’t eat that: very often peanuts have glyphosate because they’re grown in soil rotated with other crops where glyphosate is used. Glyphosate can kill / disrupt your gut biome (disrupt your hormones / endocrine system) and even without it being present, seed/legume oils (peanuts are a legume) can cause leaky gut. Also peanuts are up to 21% carbohydrates as other legumes.

I am not sure anyway if leaky gut is related to our problem. I just avoid what makes me feel bad in the long run which peanut butter does.

As far as iodine - I just know we need it and I try to get all my minerals and vitamins. It helps your thyroid produce the things it produces. I just know I feel better when I take it. I use 2.5% Lugols and take 1 drop with water after food every now and then - maybe every other day.

Edit: I just wanted to add that I’m realizing I feel better with at least some carbs (organic bread/rice). The way I minimize symptoms is by eating it only when I eat animal proteins/fats together. If I eat them alone then I usually get bad symptoms though it varies.