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Numbess after Carbs/Sugar
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<blockquote data-quote="ChetRoi" data-source="post: 1694341" data-attributes="member: 468700"><p>[USER=468501]@DionneT[/USER], [USER=269567]@ender[/USER].</p><p>Your carb sensitivity symptoms very closely mirror my own that I have experienced for about six years. I discovered early on then that two B12 cofactor vitamins--methylcobalamin and adenosylcobalamin--dramatically improved my numbness, weakness, ataxia, etc. symptoms. It was not until two years ago that I stumbled on the association of carb ingestion to the hypesthesia (mostly skin numbness) that occurred about 2-3 days later. The numbness would last about a week to 10 days and then mostly wane. The reduction in numbness seemed to be related to the B12 I was taking at the time.</p><p></p><p>Like you, I have had great difficulty finding medical help that has any idea about this pathology. But I have learned a few things along the way. The B12 cofactors mentioned above have kept me out of a wheelchair. They have also greatly improved my mental state, reducing brain fog, confusion, anger, depression, etc. to near normal levels.</p><p></p><p>Over a year ago, I began a ketogenic diet, keeping my carb intake at about 25 grams/day. avoiding the dysfunctional carbohydrate metabolic pathway. I have gained further relief from some of the symptoms as a result of this diet.</p><p></p><p>Today, the disease has progressed. I am diagnosed with a severe sensorimotor polyneuropathy with axonal features and denervation. Walking is limited, stair climbing very difficult. The carb dysmetabolism symptoms now ensue just one hour after eating, and the extent and intensity of the numbness is predicted by the glycemic load of the food.</p><p></p><p>The mouth and tongue numbness (burning mouth syndrome) has been largely relieved by Alpha Lipoic Acid (ALA), shown in clinical trials to help in the treatment of BMS.</p><p></p><p>I am now pursuing a diabetes expert clinician to focus on diabetes type 1.5--latent autoimmune diabetes in adults. The EMG/NCV test result signature indicates a pathology whose deficits closely match B12 deficiency and diabetic neuropathy.</p><p></p><p>I would appreciate hearing from either of you about your progress in treatment, if any. Also, any genetic tests you may have had to help diagnosis of this disease would be useful to know about. Thanks.</p></blockquote><p></p>
[QUOTE="ChetRoi, post: 1694341, member: 468700"] [USER=468501]@DionneT[/USER], [USER=269567]@ender[/USER]. Your carb sensitivity symptoms very closely mirror my own that I have experienced for about six years. I discovered early on then that two B12 cofactor vitamins--methylcobalamin and adenosylcobalamin--dramatically improved my numbness, weakness, ataxia, etc. symptoms. It was not until two years ago that I stumbled on the association of carb ingestion to the hypesthesia (mostly skin numbness) that occurred about 2-3 days later. The numbness would last about a week to 10 days and then mostly wane. The reduction in numbness seemed to be related to the B12 I was taking at the time. Like you, I have had great difficulty finding medical help that has any idea about this pathology. But I have learned a few things along the way. The B12 cofactors mentioned above have kept me out of a wheelchair. They have also greatly improved my mental state, reducing brain fog, confusion, anger, depression, etc. to near normal levels. Over a year ago, I began a ketogenic diet, keeping my carb intake at about 25 grams/day. avoiding the dysfunctional carbohydrate metabolic pathway. I have gained further relief from some of the symptoms as a result of this diet. Today, the disease has progressed. I am diagnosed with a severe sensorimotor polyneuropathy with axonal features and denervation. Walking is limited, stair climbing very difficult. The carb dysmetabolism symptoms now ensue just one hour after eating, and the extent and intensity of the numbness is predicted by the glycemic load of the food. The mouth and tongue numbness (burning mouth syndrome) has been largely relieved by Alpha Lipoic Acid (ALA), shown in clinical trials to help in the treatment of BMS. I am now pursuing a diabetes expert clinician to focus on diabetes type 1.5--latent autoimmune diabetes in adults. The EMG/NCV test result signature indicates a pathology whose deficits closely match B12 deficiency and diabetic neuropathy. I would appreciate hearing from either of you about your progress in treatment, if any. Also, any genetic tests you may have had to help diagnosis of this disease would be useful to know about. Thanks. [/QUOTE]
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