Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Ask A Question
Numbess after Carbs/Sugar
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="DionneT" data-source="post: 1753445" data-attributes="member: 468501"><p>Hi ChetRoi,</p><p>Unfortunately still no explanation from my side, I wanted to check in and see if you are any further forward with diagnosis?</p><p>Rheumatology were unable to find any abnormalities, no autoantibodies detected. I was feeling relatively well at the time of blood sampling so possibly levels were below detection, or maybe my issues are not autoimmune. I am still waiting for a follow up appointment to discuss these results with the consultant, the waiting times are frustratingly long.</p><p>I came across some reading on hypokalaemic paralysis, carb intake leading to lower serum potassium and causing cell polarity abnormalities in those with mutations in ion channels... most of the literature describes motor symptoms rather than sensory but the time frame would fit, my most severe symptoms often begin within an hour of carb excess and normalise within hours/days, with an underlying fluctuation in fatigue, brain fog and pain that can sometimes occur regardless of whether I have eaten carbs or not. Exercise just after eating carbohydrate seems to improve my outcome (an experimental chocolate cake followed by a 5k run resulted in no flare up of numbness!) This might potentially be due to release of potassium from muscle cells during activity so normalising blood levels, although it doesn't always work and is not very practical! My chest can feel quite tight during a flare up, with palpitations/increased resting heart rate so exercise doesn't always feel safe. </p><p>A known channelopathy would have been picked up in your sequencing so this is maybe irrelevant, but I am struggling with the lack of a diagnosis and trying to find a new path to chase <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p>Have you had any tests done both pre- and post-carb at any point?</p><p>I hope you are keeping well,</p><p>Dionne</p></blockquote><p></p>
[QUOTE="DionneT, post: 1753445, member: 468501"] Hi ChetRoi, Unfortunately still no explanation from my side, I wanted to check in and see if you are any further forward with diagnosis? Rheumatology were unable to find any abnormalities, no autoantibodies detected. I was feeling relatively well at the time of blood sampling so possibly levels were below detection, or maybe my issues are not autoimmune. I am still waiting for a follow up appointment to discuss these results with the consultant, the waiting times are frustratingly long. I came across some reading on hypokalaemic paralysis, carb intake leading to lower serum potassium and causing cell polarity abnormalities in those with mutations in ion channels... most of the literature describes motor symptoms rather than sensory but the time frame would fit, my most severe symptoms often begin within an hour of carb excess and normalise within hours/days, with an underlying fluctuation in fatigue, brain fog and pain that can sometimes occur regardless of whether I have eaten carbs or not. Exercise just after eating carbohydrate seems to improve my outcome (an experimental chocolate cake followed by a 5k run resulted in no flare up of numbness!) This might potentially be due to release of potassium from muscle cells during activity so normalising blood levels, although it doesn't always work and is not very practical! My chest can feel quite tight during a flare up, with palpitations/increased resting heart rate so exercise doesn't always feel safe. A known channelopathy would have been picked up in your sequencing so this is maybe irrelevant, but I am struggling with the lack of a diagnosis and trying to find a new path to chase :) Have you had any tests done both pre- and post-carb at any point? I hope you are keeping well, Dionne [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Ask A Question
Numbess after Carbs/Sugar
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…