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Numbess after Carbs/Sugar
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<blockquote data-quote="KimVeld" data-source="post: 1961971" data-attributes="member: 498785"><p>Am I ever glad to have found this forum! ChetRoi and Dionne T, I have learned more from you than the medical field in the last 5 months. </p><p>Here is my story: </p><p>I have always struggled with hypoglycaemia (shakes, frantic need for food, vision narrowing, etc), which I control by eating regularly. </p><p>In July 2018, after consuming a very large late breakfast (because of hypoglycaemia I previously only ate 2 eggs in the morning or I couldn’t make it to my 10:30 lunch break without shaking), I rapidly got sick. I felt weak, lightheaded, numb...so I went to lay down. Suddenly my right arm was completely dead, I kept losing my vision, strength in my body was gone...it was as if I was shutting down. It all suddenly stopped in the ambulance on the way to the hospital, without anything being administered. Originally they thought it was a TIA, so an MRI of my brain was done—all perfectly fine. </p><p>It’s since that attack though that my life has changed. For months we didn’t know what was causing this, but every morning I would make up feeling numb and weak in my trunk, down my arms, a bit down my legs. I would sit up in bed and drink 1 L of water, waiting for it to pass. On top of that, randomly I would get additional episodes. I began to track them and marked the level of numbness I felt between 1-4. During the episodes, I felt that I was on the verge of passing out/vomiting, but never did. I would drink and drink water. I couldn’t focus on anything but drinking water....sometimes up to 1-2L while I waited to snap out of it. Doctors tested everything and very little came back abnormal. Neurology released me though, saying it was an endocrine issue. Aha! We were finally on to something. My doc then tested my insulin/C peptide levels and lo and behold, they were sky high! She suggested I try the keto diet. I was game to try it for 30 days. Within 3 days, I felt normal again for the first time in months. I woke up feeling fine, and didn’t have any episodes. Now I knew this was carb/sugar related. My insulin levels on the diet were back in normal range. After 6 weeks on the diet, I started to play with food. I tried a few Carbs at Christmas time, and woke up horribly sick (back to what I was before). Then I tried to test it further with blood work. I ate a bowl of oatmeal (low glycemic food), and had my insulin levels checked—-high. The next day, I ate two pieces of stone ground whole wheat bread—-high again. </p><p>I know for sure what is happening to me is a carb intolerance. I plan to eat a high glycemic food and check again, but am terrified to do so. But I know I need to for reference. I am also waiting to see an endocrinologist who I fear won’t believe me or take me seriously, despite lab work showing high insulin levels. I fear that because everybody thinks it’s the reactive low blood sugar that is making me sick. This is not true. I’m sick while my blood sugar is in normal range (I test it all the time), but my insulin is high. I snap out of being sick with only water, not food. </p><p></p><p>I feel that this is a cellular/insulin response issue. I’ve been reading about B cells and think this is where the problem lies. I am thankful to be in the range of knowing the problem because months ago we thought and tested brain problems, heart problems, even digestive (colonoscopy) problems.</p><p></p><p>I would love to hear your thoughts on this! This is the first thing I’ve read in months of google searching that remotely resembles what is going on with me — a carb intolerance. </p><p></p><p>I am curious how much b-12 to take and if eating carbs with b-12 supplementation is possible. </p><p></p><p>Thank you!!</p></blockquote><p></p>
[QUOTE="KimVeld, post: 1961971, member: 498785"] Am I ever glad to have found this forum! ChetRoi and Dionne T, I have learned more from you than the medical field in the last 5 months. Here is my story: I have always struggled with hypoglycaemia (shakes, frantic need for food, vision narrowing, etc), which I control by eating regularly. In July 2018, after consuming a very large late breakfast (because of hypoglycaemia I previously only ate 2 eggs in the morning or I couldn’t make it to my 10:30 lunch break without shaking), I rapidly got sick. I felt weak, lightheaded, numb...so I went to lay down. Suddenly my right arm was completely dead, I kept losing my vision, strength in my body was gone...it was as if I was shutting down. It all suddenly stopped in the ambulance on the way to the hospital, without anything being administered. Originally they thought it was a TIA, so an MRI of my brain was done—all perfectly fine. It’s since that attack though that my life has changed. For months we didn’t know what was causing this, but every morning I would make up feeling numb and weak in my trunk, down my arms, a bit down my legs. I would sit up in bed and drink 1 L of water, waiting for it to pass. On top of that, randomly I would get additional episodes. I began to track them and marked the level of numbness I felt between 1-4. During the episodes, I felt that I was on the verge of passing out/vomiting, but never did. I would drink and drink water. I couldn’t focus on anything but drinking water....sometimes up to 1-2L while I waited to snap out of it. Doctors tested everything and very little came back abnormal. Neurology released me though, saying it was an endocrine issue. Aha! We were finally on to something. My doc then tested my insulin/C peptide levels and lo and behold, they were sky high! She suggested I try the keto diet. I was game to try it for 30 days. Within 3 days, I felt normal again for the first time in months. I woke up feeling fine, and didn’t have any episodes. Now I knew this was carb/sugar related. My insulin levels on the diet were back in normal range. After 6 weeks on the diet, I started to play with food. I tried a few Carbs at Christmas time, and woke up horribly sick (back to what I was before). Then I tried to test it further with blood work. I ate a bowl of oatmeal (low glycemic food), and had my insulin levels checked—-high. The next day, I ate two pieces of stone ground whole wheat bread—-high again. I know for sure what is happening to me is a carb intolerance. I plan to eat a high glycemic food and check again, but am terrified to do so. But I know I need to for reference. I am also waiting to see an endocrinologist who I fear won’t believe me or take me seriously, despite lab work showing high insulin levels. I fear that because everybody thinks it’s the reactive low blood sugar that is making me sick. This is not true. I’m sick while my blood sugar is in normal range (I test it all the time), but my insulin is high. I snap out of being sick with only water, not food. I feel that this is a cellular/insulin response issue. I’ve been reading about B cells and think this is where the problem lies. I am thankful to be in the range of knowing the problem because months ago we thought and tested brain problems, heart problems, even digestive (colonoscopy) problems. I would love to hear your thoughts on this! This is the first thing I’ve read in months of google searching that remotely resembles what is going on with me — a carb intolerance. I am curious how much b-12 to take and if eating carbs with b-12 supplementation is possible. Thank you!! [/QUOTE]
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